Evidence map›Paper›PMID 40207420›Full record

ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2025

Increasing representation of Asian American, Native Hawaiian, and Pacific Islander communities in aging, dementia, and caregiving research: An update from the CARE registry.

Joshua D Grill, Janice Y Tsoh, Bora Nam, Marian Tzuang, Daren Huang, Gabriel Fara-On, Cati Brown Johnson, Thomas J Hoffmann, Oanh L Meyer, Arnab Mukherjea and 10 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Understanding participants' attitudes toward research in the CARE registry.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Joshua D GrillInstitute for Memory Impairments and Neurological Disorders, Departments of Psychiatry & Human Behavior and Neurobiology & Behavior, University of California Irvine, Irvine, California, USA.
Janice Y TsohDepartment of Psychiatry and Behavioral Sciences, University of California San Francisco, San Francisco, California, USA.
Bora NamDepartment of Community Health Systems, University of California San Francisco, San Francisco, California, USA.
Marian TzuangDepartment of Community Health Systems, University of California San Francisco, San Francisco, California, USA.
Daren HuangDepartment of Community Health Systems, University of California San Francisco, San Francisco, California, USA.
Gabriel Fara-OnDepartment of Community Health Systems, University of California San Francisco, San Francisco, California, USA.
Cati Brown JohnsonEvaluation Sciences Unit, Division of Primary Care and Population Health, Stanford School of Medicine, Palo Alto, California, USA.
Thomas J HoffmannDepartment of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, California, USA.
Oanh L MeyerAsian American Research Center on Health (ARCH), University of California San Francisco, San Francisco, California, USA.
Arnab MukherjeaAsian American Research Center on Health (ARCH), University of California San Francisco, San Francisco, California, USA.
Christy NishitaCenter on Aging, University of Hawaii, Honolulu, Hawai'i, USA.
Dolores Gallagher-ThompsonDepartment of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, California, USA.
Ladson HintonDepartment of Neurology, University of California, Davis, Sacramento, California, USA.
Va'a TofaeonoAmerican Samoa Community Cancer Coalitions, Nu'uuli, American Samoa.
Poki'i BalazKokua Kalihi Valley Comprehensive Family Services, Honolulu, Hawai'i, USA.
Justina P TavanaDepartment of Biology, Brigham Young University, Provo, Utah, USA.
Quyen Q TietCalifornia School of Professional Psychology at Alliant International University, Emeryville, California, USA.
Joyce R JavierDepartment of Health Systems Science, Kaiser Permanente Bernard J. Tyson School of Medicine, Pasadena, California, USA.
Quyen VuongInternational Children Assistance Network, Milpitas, California, USA.
Van Ta ParkAsian American Research Center on Health (ARCH), University of California San Francisco, San Francisco, California, USA.

Funding

Collaborative Approach for Asian Americans, Native Hawaiians, and Pacific Islanders Research and Education (CARE) 2.0R01AG083926 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Joshua Grill, Van My Ta Park · 2023 to 2026
$12.9M
COVID-19 Effects on the Mental and Physical Health of AAPI Survey Study (COMPASS) IIR24AG063718 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI PARK, VAN MY TA · 2019 to 2021
$4.4M
National Institute on Aging of the National Institutes of Health R01AG083926National Institute on Aging of the National Institutes of Health R24AG063718NIA NIH HHS R01 AG083926NIA NIH HHS R24 AG063718
6 · The paper itself

Abstract

introductionAsian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet remain underrepresented in aging, dementia, and caregiving research.

methodsThe Collaborative Approach for AANHPI Research & Education (CARE), a recruitment registry, aims to improve the representation of AANHPI older adults in research. We describe activity to date, as well as planned expansions in cultural groups, language capacity, and data collection in the registry.

resultsBetween October 15, 2020, and November 4, 2024, 10,367 total AANHPI adults enrolled in the CARE registry, including 50.0% with limited English proficiency, 35.1% age ≥ 65, and 80.2% with no prior participation in research. CARE has made more than 13,954 referrals of 6868 unique registrants to at least one study. DISCUSSION: Through collaborative partnerships with AANHPI communities and researchers, the CARE Registry is achieving its goal of increasing AANHPI representation in research. HIGHLIGHTS: The CARE registry has enrolled 10,367 AANHPI adults. More than 80% of those enrolled had no prior research experience. As of November 4, 2024, CARE had referred 6868 unique participants to at least one study. In total, CARE has made 13,954 referrals to requesting studies.

Indexed as

AgingAsian American Native Hawaiian and Pacific IslanderCaregiversDementiaRegistriesAgedAged, 80 and overFemaleHumansMaleUnited StatesAsian AmericandiversityinclusionNative HawaiianPacific Islanderrecruitmentstudy design

Identifiers

PMID40207420
PMCPMC11982931

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.