ArticleCancer medicine2025
Navigating Life With High-Grade Glioma: Experiences and Needs of Adolescents and Young Adults.
Article in Cancer medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
3 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Experiences of Cancer-Related Cognitive Impairment Across Cancer Types: Qualitative Systematic Review.JMIR cancer · 2025Pooled it
- From diagnosis to daily realities: longitudinal phenomenological exploration of symptom trajectories in glioma survivorship.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Improving quality of care for patients with high-grade glioma and their informal caregivers: Insights from focus groups with healthcare professionals.Neuro-oncology practice · 2026Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
backgroundAdolescents and young adults (AYA, 18-39) with high-grade glioma (HGG) face unique challenges at a life stage focused on autonomy, careers, relationships, and family planning.
aimThis study explores their experiences to inform life-stage appropriate support and resources.
methodsIn this mixed-methods study, we surveyed AYA HGG patients at Princess Margaret Cancer Centre (PM) to assess symptom experiences and care satisfaction. Interviews further explored their illness experiences and needs. Descriptive statistics summarized survey data, and thematic analysis guided by Braun and Clarke's framework identified key interview themes. Triangulation compared survey and interview results for a comprehensive understanding.
resultsSeventeen participants (7 men, 10 women; mean age 30.57) completed surveys and interviews. Triangulation revealed typical AYA challenges, such as delays in education, careers, and relationships, along with HGG-specific issues. Three main themes emerged: (1) managing cognitive and treatment-related impacts on life goals, (2) addressing physical and cognitive impairments affecting relationships, and (3) navigating identity loss and independence due to neurological symptoms.
conclusionsThese findings highlight the need for tailored interventions and educational support integrated into AYA HGG care pathways.
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Registered trials
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