ReviewHealth expectations : an international journal of public participation in health care and health policy2025
Navigating Power Imbalances and Stigma in Mental Healthcare. Patient-Reported Barriers and Facilitators to Participation in Shared Decision-Making in Mental Health Care, a Qualitative Meta-Summary.
Review in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Responsible artificial intelligence integration framework for psychiatric guidelines.The international journal of neuropsychopharmacology · 2026Guideline
- A Qualitative Comparative Study of the Doctor-Patient Relationship Model and Decision-Making Style among Chinese and Japanese Doctors.Asian bioethics review · 2026Article
- "Truly having a conversation with each member about their needs": accessibility considerations for the engagement of people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2026Article
- Experiences of Dissensus Between People Living With Mental Illness and Their Care Providers.Cureus · 2026Article
- Dignity in mental health care: the conceptual connections between sense of dignity, stigma and self-stigma among people with mental disorder diagnoses.Frontiers in psychiatry · 2026Article
- Companion animals and mental health: a narrative synthesis of how pets deliver therapeutic mechanisms outside formal provision.Frontiers in psychiatry · 2026Review
- Fifty Years of One Flew Over the Cuckoo's Nest: A Qualitative Exploration of Mental Health Staff's Perspectives.International journal of mental health nursing · 2025Article
- Patient participation and its determinants based on the Social Ecological Model: a cross-sectional study in North China.BMC health services research · 2025Article
- Access and barriers to reproductive mental health services. A mixed-methods examination of self-stigmatization, help-seeking motivation and experiences with primary or reproductive healthcare professionals.Frontiers in global women's health · 2025Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
backgroundThe use of shared decision-making (SDM) in mental healthcare has been viewed as at least as important as its use in non-mental healthcare settings, but it still does not routinely take place in this setting. To further explore SDM processes with people with lived experience, we provide a qualitative meta-summary on patient-reported barriers and facilitators to participation in SDM within the context of mental healthcare.
methodsWithin the set of selected studies for a larger qualitative meta-summary, using five databases, we selected the studies that had surveyed patients with mental illness for further analysis in this paper. Search terms were based on the concepts: 'decision making', 'patient participation', 'patient perceptions' and 'study design' of patient reporting, including patient surveys, interviews and focus groups.
resultsOut of the 90 studies that had been selected for the larger review, we selected 13 articles concerning mental illness for more detailed analysis in this review. In total, we identified 29 different influencing factors and we found 6 major barriers: 'Lack of choice', 'Not being respected as a person', 'Feeling stigma from physician', 'Disease burden', 'Power imbalance' and 'Low self-efficacy to participate'. 'Clear information provision about options', 'Being respected as a person, being taken into account', 'Good physician-patient relationship' and 'Belief in the importance of one's own role' were the main facilitators.
conclusionsStigma and self-stigma still seem to persist in mental healthcare and continue to suppress patients' self-efficacy to participate in SDM in this setting. There is much discussion of inclusion and diversity worldwide, and these themes are just as topical for patients with mental health problems. Further work seems necessary to eradicate all stigma and self-stigma in this setting when striving for care that could be 'as shared as possible'. PATIENT AND PUBLIC CONTRIBUTION: The authors wish to thank Mr. Walter Geuens, a person with lived experience in mental healthcare, for his careful reading and thorough feedback on the final paper.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.