Evidence map›Paper›PMID 40191656›Full record

ArticleCHEST critical care2025

A Descriptive Qualitative Study of Religion and Spirituality's Role in Critical Illness Decision-Making Among Black and White Family Caregivers.

Oluwatumilara F Akeke, Dingyue Wang, Deborah Ejem, Kimberly S Johnson, Sharron L Docherty, Christopher E Cox, Katelyn Dempsey, Laura Fish, Sirajbir Sodhi, Devika Shenoy and 3 more

Abstract read
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Article in CHEST critical care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Oluwatumilara F AkekeSchool of Public Health, University of North Carolina at Chapel Hill, Chapel Hill.
Dingyue WangSchool of Nursing, Duke University.
Deborah EjemSchool of Nursing, University of Alabama at Birmingham, Birmingham, AL.
Kimberly S JohnsonDepartment of Medicine, Duke University.
Sharron L DochertySchool of Nursing, Duke University.
Christopher E CoxDepartment of Medicine, Duke University.
Katelyn DempseyDepartment of Medicine, Duke University.
Laura FishBehavioral Health and Survey Research Core, Duke University.
Sirajbir SodhiSchool of Medicine, Duke University.
Devika ShenoySchool of Medicine, Duke University.
Nidhi CharanPhiladelphia College of Osteopathic Medicine, Philadelphia, PA.
Muhammed S BahDepartment of Population Health Sciences, Duke University.
Deepshikha C AshanaDepartment of Medicine, Duke University.

Funding

Research Project 3U54MD012530 · NIMHD · DUKE UNIVERSITY · PI JOHNSON, KIMBERLY S. · 2017 to 2022
$8.8M
Racial disparities in shared decision making for patients with acute respiratory failureK23HL164968 · NHLBI · DUKE UNIVERSITY · PI Deepshikha Charan Ashana · 2022 to 2026
$841k
NHLBI NIH HHS K23 HL164968NIMHD NIH HHS U54 MD012530
6 · The paper itself

Abstract

backgroundSpiritual beliefs and spiritual support from clinicians can affect medical decision-making and coping during times of serious illness. RESEARCH QUESTION: How do religion and spirituality affect the critical illness experience of Black and White family caregivers of patients who are critically ill? STUDY DESIGN AND

methodsTwenty-one semistructured interviews were conducted with Black and White family caregivers of patients admitted to ICUs in a southeastern United States health system between January 3, 2023, and May 11, 2023. Eligible family caregivers either reported unmet spiritual needs or a high degree of importance of spirituality in their lives. Participants were asked how spirituality affected medical decision-making and coping while their loved ones were seriously ill. Coders were masked to participant race during thematic analysis.

resultsOf 21 family caregivers, 9 caregivers (42.9%) were Black and 12 caregivers (57.1%) were White. Black and White family caregivers generally were middle-aged (mean [SD]: 50.6 [13.6] years and 61.7 [10.7] years, respectively) and female (n = 7 [77.8%] and n = 9 [75.0%], respectively). We observed that clinicians showed less engagement about spirituality with Black compared with White family caregivers in this sample. Black family caregivers felt more comfortable discussing their spirituality with members of their community, such as pastors or friends. A common belief among all family caregivers in this sample was that God, rather than the medical team, was in control of their loved one's outcome. This was accompanied by a shared desire for accessible spiritual spaces in the ICU and proactive clinician engagement in their spirituality.

interpretationAlthough spirituality served as an important coping mechanism for all family caregivers in this sample, racial differences in spiritual support offered to family caregivers were identified. Ensuring that multidisciplinary critical care teams are prepared to deliver culturally competent spiritual care is a priority.

Indexed as

caregiverscritical illnesshealth equityICUmedical decision-makingreligionspiritualityspiritual support

Identifiers

PMID40191656
PMCPMC11970621

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LicenceCC BY-NC-ND
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.