Evidence map›Paper›PMID 40189848›Full record

ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2025

A multiperspective investigation of the underrepresentation of minoritized ethnic participants in dementia research and proposed strategies to improve inclusive recruitment practices.

Natalie L Marchant, Elahi Hossain, Shiping Chen, Geeti Kabra, Laiba Ahmad, Ione Fraser, Lorraine Cezair-Phillip, Aikaterini Fotoupoulou, Harpreet Sihre, Naaheed Mukadam and 1 more

Abstract read
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In one paragraph

Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Natalie L MarchantDivision of Psychiatry, University College London, London, UK.
Elahi HossainUCL Interaction Centre, University College London, London, UK.
Shiping ChenUCL Interaction Centre, University College London, London, UK.
Geeti KabraDivision of Psychiatry, University College London, London, UK.
Laiba AhmadDivision of Psychiatry, University College London, London, UK.
Ione FraserMember of the public.
Lorraine Cezair-PhillipMember of the public.
Aikaterini FotoupoulouDepartment of Clinical, Educational & Health Psychology, University College London, London, UK.
Harpreet SihreARC North Thames Academy, Primary Care and Population Health, UCL Medical School (Royal Free Campus), University College London, London, UK.
Naaheed MukadamDivision of Psychiatry, University College London, London, UK.
Anna L CoxUCL Interaction Centre, University College London, London, UK.

Funding

UCL Grand Challenges
6 · The paper itself

Abstract

introductionMinoritized ethnic populations are underrepresented in dementia research despite having differing risk and prognosis profiles. We sought to gain multiperspective insights about why minoritized ethnic groups are underrepresented in dementia research.

methodsQualitative data were collected from focus groups with individuals from minoritized ethnic backgrounds in the UK (n = 13) and open-ended survey responses from international dementia researchers (n = 54). Facilitators and barriers to the inclusion of minoritized ethnic populations were examined using the COM-B model of behavior.

resultsCommunity member barriers included lacking knowledge about dementia and research opportunities, language, stigma, and medical/institutional racism. Facilitators included using varied recruitment strategies, culturally appropriate language, communal research, and salient outcomes. Researcher barriers included lacking skills, knowledge, materials, time, and funding to sustainably engage with minoritized ethnic communities. Facilitators included culturally sensitive, community-centered approaches in diverse research groups. DISCUSSION: Our study contributes multiperspective insights about the underrepresentation of minoritized ethnic populations in dementia research and proposes strategies to improve inclusive research practices. HIGHLIGHTS: Minoritized ethnic communities are underrepresented in dementia research. Community members want varied, culturally tailored recruitment strategies and communal research with salient outcomes. Researchers describe lacking skills, time, and funding for sustainable engagement. Targeted recruitment campaigns and inclusive research programs are recommended.

Indexed as

Biomedical ResearchDementiaEthnicityPatient SelectionFemaleFocus GroupsHumansMaleQualitative ResearchSurveys and QuestionnairesUnited KingdomAlzheimer's diseasediversityethnicityethnic minoritiesraceunderrepresentedunderserved

Identifiers

PMID40189848
PMCPMC11973134

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.