Evidence map›Paper›PMID 40188343›Full record

ArticleHealth and quality of life outcomes2025

Construct validity of measures of care home resident quality of life: cross-sectional analysis using data from a pilot minimum data set in England.

Stephen Allan, Stacey Rand, Ann-Marie Towers, Kaat De Corte, Freya Tracey, Elizabeth Crellin, Therese Lloyd, Rachael E Carroll, Sinead Palmer, Lucy Webster and 6 more

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Article in Health and quality of life outcomes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Stephen AllanPersonal Social Services Research Unit (PSSRU), University of Kent, Kent, UK. S.Allan@kent.ac.uk.ORCID http://orcid.org/0000-0002-1208-9837
Stacey RandPersonal Social Services Research Unit (PSSRU), University of Kent, Kent, UK.ORCID http://orcid.org/0000-0001-9071-2842
Ann-Marie TowersHealth and Social Care Workforce Research Unit, King's College London, London, UK.ORCID http://orcid.org/0000-0003-3597-1061
Kaat De CorteThe Health Foundation, London, UK.ORCID http://orcid.org/0000-0002-4370-2606
Freya TraceyThe Health Foundation, London, UK.ORCID http://orcid.org/0009-0005-9958-9867
Elizabeth CrellinThe Health Foundation, London, UK.ORCID http://orcid.org/0000-0001-8774-224X
Therese LloydThe Health Foundation, London, UK.ORCID http://orcid.org/0000-0002-5915-6136
Rachael E CarrollSchool of Medicine, University of Nottingham, Nottingham, UK.ORCID http://orcid.org/0009-0007-1838-1699
Sinead PalmerPersonal Social Services Research Unit (PSSRU), University of Kent, Kent, UK.ORCID http://orcid.org/0000-0001-8106-3078
Lucy WebsterCentre for Health Services Studies (CHSS), University of Kent, Kent, UK.ORCID http://orcid.org/0000-0001-9152-4990
Adam GordonQueen Mary University, London, UK.ORCID http://orcid.org/0000-0003-1676-9853
Nick SmithCentre for Health Services Studies (CHSS), University of Kent, Kent, UK.ORCID http://orcid.org/0000-0001-9793-6988
Gizdem AkdurCentre for Research for Public Health and Community Care, University of Hertfordshire, Hatfield, AL10 9AB, UK.ORCID http://orcid.org/0000-0001-7326-4750
Anne KillettSchool of Health Sciences, University of East Anglia, Norwich, NR4 7TJ, UK.ORCID http://orcid.org/0000-0003-4080-8365
Karen SpilsburySchool of Healthcare, Faculty of Medicine and Health, University of Leeds, Leeds, UK.ORCID http://orcid.org/0000-0002-6908-0032
Claire GoodmanCentre for Research for Public Health and Community Care, University of Hertfordshire, Hatfield, AL10 9AB, UK.ORCID http://orcid.org/0000-0002-8938-4893

Funding

Health Services and Delivery Research Programme HS&DR NIHR127234
6 · The paper itself

Abstract

backgroundTo maintain good standards of care, evaluations of policy interventions or potential improvements to care are required. A number of quality of life (QoL) measures could be used but there is little evidence for England as to which measures would be appropriate. Using data from a pilot Minimum Data Set (MDS) for care home residents from the Developing resources And minimum dataset for Care Homes' Adoption (DACHA) study, we assessed the discriminant construct validity of QoL measures, using hypothesis testing to assess the factors associated with QoL.

methodsCare home records for 679 residents aged over 65 from 34 care homes were available that had been linked to health records and care home provider data. In addition to data on demographics, level of needs and impairment, proxy report measures of social care-, capability- and health-related QoL of participants were completed (ASCOT-Proxy-Resident, ICECAP-O, EQ-5D-5L Proxy 2). Discriminant construct validity was assessed through testing hypotheses developed from previous research and QoL measure constructs. Multilevel regression models were analysed to understand how QoL was influenced by personal characteristics (e.g. sex, levels of functional and cognitive ability), care home level factors (type of home, level of quality) and resident use of health services (potentially avoidable emergency hospital admissions). Multiple imputation was used to address missing data.

resultsAll three QoL measures had acceptable construct validity and captured different aspects of QoL, indicated by different factors explaining variation in each measure. All three measures were negatively associated with levels of cognitive impairment, whilst ICECAP-O and EQ-5D-5L Proxy 2 were negatively associated with low levels of functional ability. ASCOT-Proxy-Resident was positively associated with aspects of quality and care effectiveness at both resident- and care home-level.

conclusionThe study found acceptable construct validity for ASCOT-Proxy-Resident, ICECAP-O and EQ-5D-5L Proxy 2 in care homes, with findings suggesting the three are complementary measures based on different constructs. The study has also provided evidence to support the inclusion of these QoL measures in any future MDS.

Indexed as

Homes for the AgedNursing HomesQuality of LifeAgedAged, 80 and overCross-Sectional StudiesEnglandFemaleHumansMalePilot ProjectsPsychometricsReproducibility of ResultsSurveys and QuestionnairesCare homesEnglandMeasurementOlder adultsQuality of lifeValidity.

Identifiers

PMID40188343
PMCPMC11972536

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LicenceCC BY
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.