ArticleJournal of pain and symptom management2025
A Qualitative Study of CMC Caregivers' Perspectives about their Emotional Well-Being.
Article in Journal of pain and symptom management, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
3 citing papers in PubMed.
- Home-Based Parenting Strategies and Challenges of Primary Parental Caregivers of Children With Medical Complexity in Japan: A Qualitative Study.Child: care, health and development · 2026Article
- Associations of Environmental Modifications and Collaborative Care Environments with Positive Health in Families of Children with Medical Complexity: A Secondary Analysis.Nursing reports (Pavia, Italy) · 2026Article
- Unseen, Unrelenting, and Uncertain: Caregiver-Identified Targets For Pediatric Palliative Care.Journal of pain and symptom management · 2026Article
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
objectiveTo better understand the perspectives of family caregivers' of children with medical complexity (CMC) about their emotional well-being.
methodsWe conducted a qualitative study of family caregivers of CMC receiving medical care at an academic children's hospital in western Pennsylvania. Participants completed one-on-one, in-depth, semi-structured interviews examining their perspectives about their emotional well-being in the context of CMC caregiving. We used a constant-comparative and inductive approach to analyze deidentified transcripts and identify emergent themes.
resultsWe interviewed 19 participants (17 [90%] female; 14 [74%] White; mean age 43 years) from March to December 2022. Participant's children were 11 years old on average (range 2-20 years), utilized medical technology (19 [100%]), and lived with chronic conditions most commonly affecting the neurologic (19 [100%]), gastrointestinal (19 [100%]), and respiratory (16 [84%]) organ systems. Three emergent themes reflected how CMC caregivers' emotional well-being exists on a dynamic spectrum: 1) deep reward vs. sadness, 2) increased and decreased control of one's emotions, and 3) psychological strength vs. exhaustion and defeat. Participants reported experiencing these seemingly conflicting emotions either concurrently or oscillating between them.
conclusionFamily caregivers of CMC report both strongly positive and negative changes to their emotional well-being which are often dynamic and in tension. Our findings can be used to inform the development and implementation of future clinical and research efforts aiming to improve the emotional well-being of this critically important caregiver population.
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