Evidence map›Paper›PMID 40185614›Full record

ArticleArchives of disease in childhood2025

Perceptions of consent for a paediatric telehealth trial during emergency transport in Pakistan.

Joanna Palasz, Noreen Afzal, Walid Hussain Farooqi, Amyna Husain, Kerry Woolfall, Joseph Ali, Sheza Hassan, Asma Altaf Hussain Merchant, Huba Atiq, Ali Kashan and 5 more

Abstract read
In one paragraph

Article in Archives of disease in childhood, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Joanna PalaszDepartment of Emergency Medicine, Weill Cornell Medicine, New York, New York, USA.ORCID 0000-0003-0559-3725
Noreen AfzalDean's Office, The Aga Khan University, Karachi, Pakistan.
Walid Hussain FarooqiDepartment of Emergency Medicine, Weill Cornell Medicine, New York, New York, USA.ORCID 0000-0002-2974-2636
Amyna HusainJohns Hopkins University, Baltimore, Maryland, USA.
Kerry WoolfallInstitute of Population Health, University of Liverpool, Liverpool, UK.
Joseph AliBerman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland, USA.
Sheza HassanDepartment of Emergency Medicine, Weill Cornell Medicine, New York, New York, USA.
Asma Altaf Hussain MerchantThe Aga Khan University, Karachi, Pakistan.ORCID 0000-0002-0393-2079
Huba AtiqEmergency Medicine, The Aga Khan University, Karachi, Pakistan.
Ali KashanSindh Integrated Emergency and Health Services, Karachi, Pakistan.
Adil Hussain HaiderDean's Office, The Aga Khan University, Karachi, Pakistan.
Kamran IdrisSindh Integrated Emergency and Health Services, Karachi, Pakistan.
Irfan HabibChildLife Foundation, Karachi, Pakistan.
Natasha ShaukatThe Aga Khan University, Karachi, Pakistan.
Junaid RazzakDepartment of Emergency Medicine, Weill Cornell Medicine, New York, New York, USA junaid.razzak@med.cornell.edu.

Funding

Feasibility and Efficacy of Ambulance-Based mhealth for Pediatric Emergencies (FEAMER) TrialR21HD103049 · NICHD · WEILL MEDICAL COLL OF CORNELL UNIV · PI RAZZAK, JUNAID ABDUL · 2022 to 2023
$386k
NICHD NIH HHS R21 HD103049
6 · The paper itself

Abstract

introductionChildhood mortality in the emergency setting is disproportionately high in low-income and middle-income countries (LMIC), with limited research dedicated to improving timely interventions, especially for critically ill children during transport. To perform essential prehospital paediatric research, there is a need for a tailored consent process, which reflects the specific needs and concerns of participants in this challenging research context.

objectiveThe objective is to prospectively investigate stakeholder perceptions and preferences regarding consent processes for a specific paediatric ambulance-based telemedicine trial.

methodsExploratory qualitative study design using face-to-face semistructured interviews and focus group discussions. Data were analysed using thematic analysis. Participants included healthcare providers (paediatric telemedicine physicians and emergency medical technicians) and parents of children who required emergency transportation in Karachi, Pakistan.

results47 participants, ranging from 19 to 47 years old, were involved in in-depth interviews or focus group discussions. The participants comprised 29 healthcare workers and 18 parents. Among them, 9 were women and 38 were men. Expressing diverse attitudes towards different consent methods, the majority recommended a prospective written informed consent approach to build trust and provide legal protection. Participants understood the situational incapacity that occurs in emergency settings, emphasised the importance of keeping the consent brief and recommended a subsequent contact in 2-3 days after the emergency transport to reconfirm consent and answer any questions.

conclusionOur interpretation of the findings revealed that participants preferred a staged consent process for telemedicine trials in LMIC paediatric emergency settings.

Indexed as

Emergency Medical ServicesInformed ConsentTelemedicineAdultAmbulancesAttitude of Health PersonnelChildFemaleFocus GroupsHumansInterviews as TopicMaleMiddle AgedPakistanParentsProspective StudiesEmergency CareEthicsPaediatricsTechnology

Identifiers

PMID40185614
PMCPMC13435407

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.