Evidence map›Paper›PMID 40176441›Full record

ArticleJMIR pediatrics and parenting2025

Perspectives of Adolescents and Young Adults With Inflammatory Bowel Disease on a Biopsychosocial Transition Intervention: Qualitative Interview Study.

Brooke Allemang, Ashleigh Miatello, Mira Browne, Melanie Barwick, Pranshu Maini, Joshua Eszczuk, Chetan Pandit, Tandeep Sadhra, Laura Forhan, Natasha Bollegala and 17 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR pediatrics and parenting, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

Brooke AllemangChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0003-0634-4472
Ashleigh MiatelloChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-1711-8676
Mira BrowneChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0009-0008-9457-2435
Melanie BarwickChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-2478-604X
Pranshu MainiChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0009-0005-3573-9133
Joshua EszczukFaculty of Kinesiology, University of Alberta, Edmonton, AB, Canada.ORCID http://orcid.org/0009-0002-0942-8647
Chetan PanditETH Zurich, Zurich, Switzerland.ORCID http://orcid.org/0000-0001-7334-2296
Tandeep SadhraFaculty of Health, York University, Toronto, ON, Canada.ORCID http://orcid.org/0009-0006-8185-8106
Laura ForhanDepartment of Molecular and Cellular Biology, University of Guelph, Guelph, ON, Canada.ORCID http://orcid.org/0009-0006-8224-6208
Natasha BollegalaDivision of Gastroenterology, Women's College Hospital, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-4742-4500
Nancy FuDivision of Gastroenterology, Department of Medicine, University of British Columbia, Vancouver, BC, Canada.ORCID http://orcid.org/0000-0002-1752-8659
Kate LeeCrohn's and Colitis Canada, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-3491-6725
Emily DekkerCrohn's and Colitis Canada, Toronto, ON, Canada.ORCID http://orcid.org/0009-0005-2911-9085
Irina NistorCrohn's and Colitis Canada, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-7935-0753
Sara Ahola KohutChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0003-1562-947X
Laurie KeeferDivision of Gastroenterology, Icahn School of Medicine at Mount Sinai, New York, NY, United States.ORCID http://orcid.org/0000-0003-4779-8593
Anne Marie GriffithsChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0001-8623-4665
Thomas D WaltersChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-4184-4600
Samantha MicsinszkiCanChild Centre for Childhood Disability Research and the School of Rehabilitation Science, McMaster University, Hamilton, ON, Canada.ORCID http://orcid.org/0000-0002-1357-1158
David R MackCHEO Inflammatory Bowel Disease Centre, Division of Gastroenterology, Hepatology and Nutrition, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.ORCID http://orcid.org/0000-0001-5604-3200
Sally LawrenceDivision of Gastroenterology, Hepatology and Nutrition, BC Children's Hospital, Vancouver, BC, Canada.ORCID http://orcid.org/0000-0002-7645-7053
Karen I KroekerDivision of Gastroenterology, Department of Medicine, University of Alberta, Edmonton, AB, Canada.ORCID http://orcid.org/0000-0002-3886-4213
Jacqueline de GuzmanCrohn's and Colitis Canada, Toronto, ON, Canada.ORCID http://orcid.org/0009-0001-3371-9244
Aalia TausifCrohn's and Colitis Canada, Toronto, ON, Canada.ORCID http://orcid.org/0009-0003-6707-4901
Claudia TersigniChild Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0009-0004-0695-5606
Samantha J Anthony *Child Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-1800-2333
Eric I Benchimol *Child Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.ORCID http://orcid.org/0000-0001-8855-3598

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The transition from pediatric to adult health care marks a complex and pivotal process for adolescents and young adults with inflammatory bowel disease (IBD). This group requires support regarding disease self-management, skill development, and system navigation in preparation for transition. Evidence-based interventions are needed to promote optimal health and psychosocial outcomes for adolescents and young adults with IBD during this period. Objective: A qualitative study embedded within a randomized controlled trial was conducted to evaluate the perceived impact of a biopsychosocial transition intervention on the transition experiences of adolescents and young adults, their views on the intervention, and recommendations for future care. Methods: This patient-oriented research study used a qualitative descriptive design. Virtual semistructured interviews were held with 21 adolescents and young adults with IBD (16-18 y) enrolled in the randomized controlled trial (intervention arm n=11 and control arm n=10). Interviews were audio-recorded, transcribed, and analyzed using an inductive approach to reflexive thematic analysis. Five members of a Youth Advisory Panel with lived experience of IBD collaborated throughout data analysis, interpretation, and the presentation of findings. Results: We constructed three themes through our analysis: (1) making meaning of transitions in care; (2) perceptions and impact of the biopsychosocial transition intervention; and (3) considerations for future transition care, including the importance of individualized support. Conclusions: Our findings illustrate the importance of relationships and the impact of a biopsychosocial intervention on adolescents' and young adults' confidence, knowledge, and self-management skills during transition. The results, which indicate the criticality of tailoring transition supports according to adolescents' and young adults' preferences and characteristics, will be used to refine the biopsychosocial intervention before it can be scaled and spread.

Indexed as

adolescentsbiopsychosocialCrohn's diseasegastroenterologyinflammatory bowel diseasepatient-oriented researchpatient perspectivesqualitativequalitative methodstransition to adult careyoung adults

Identifiers

PMID40176441
PMCPMC12038760

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.