Evidence map›Paper›PMID 40176002›Full record

ReviewBMC palliative care2025

Children's palliative care and public health: position statement.

Julia Downing, Duncan Randall, Katrina Mcnamara-Goodger, Peter Ellis, Gayatri Palat, Zipporah Ali, Jenny Hunt, Rut Kiman, Marie Friedel, Sue Neilson

Abstract readReviewConsensus Statement
In one paragraph

Review in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Julia DowningMakerere/ Mulago Palliative Care Unit, Palliative care Education and Research Consortium, Kampala, Uganda. julia.downing@icpcn.org.
Duncan RandallDepartment of Nursing Sciences, Bournemouth University, Bournemouth, UK.
Katrina Mcnamara-GoodgerRetired Children's Palliative Care Nurse, Fellow of Association of British Paediatric Nurses, Wolverhampton, UK.
Peter EllisRetired Chief Executive, Richard House Children's Hospice, London, UK.
Gayatri PalatDepartment Pain and Palliative Medicine, MNJ Institute of Oncology, Hyderabad, India.
Zipporah AliPublic Health Specialist, Board Director African Palliative Care Association and Kenya Hospices and Palliative Care Association, Nairobi, Kenya.
Jenny HuntIndependent palliative social worker/ Bereavement therapist, Harare, Zimbabwe.
Rut KimanInstituto Pallium Latinoamerica, University of Buenos Aires, Buenos Aires, Argentina.
Marie FriedelDepartment of Life Science and Medicine, Faculty of Science, Technology and Medicine, University of Luxembourg, Luxembourg City, Luxembourg.
Sue NeilsonDepartment of Nursing Studies, University of Birmingham, Birmingham, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A public health approach to palliative care has been developed in adult palliative care over several years. Despite the concepts of health and wellbeing, and palliation, dying and death appearing at first to be contradictory, a cogent argument has been made to understand palliative care in the context of promoting public health. However, the application to children's palliative care has not been articulated in depth. The need for and development of children's palliative care is well documented globally, with the public health model, and more recently the WHO conceptual model for palliative care development being key to ongoing development and progress in service delivery. Engaging communities to influence care provision is essential and important to ensure provision of appropriate and sustainable care. Positioning children's palliative care within the public health perspective transforms care and service provision and centres around the child, their childhood and their carers, as part of the community and the wider population. Access to healthcare is vital, of course, but so is access to childhoods which guarantee children's human rights and access to being a child living a childhood, whether that childhood is long, short or leads to an adulthood. Uncovering differing perspectives on the intersection of public health and children's palliative care that varied between global regions, led to the development of eight statements. Our collaboration between colleagues in seven countries in different regions has allowed us to set out the context of the children's palliative public health approach. This reflects a balancing of medical/nursing professionalised care and partnerships, co production and participation of communities. The public health approach to children's palliative care is radical, it is transformational, and means changing how we do things in order to improve the lives of children with palliative care needs and their families around the world.

Indexed as

Palliative CarePediatricsPublic HealthChildHumansChildrenCommunityCo-productionGlobalPaediatricsPalliative carePublic health

Identifiers

PMID40176002
PMCPMC11963523

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.