Evidence map›Paper›PMID 40175223›Full record

ReviewDisability and health journal2025

A qualitative meta-synthesis of the perinatal healthcare experiences of people with disability.

Sarah E Harkins, Alexandria L Hahn, Meghan Didier, Caroline Walsh, Veronica Barcelona, Katherine Melton, Maureen George

Abstract readReview
In one paragraph

Review in Disability and health journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Sarah E HarkinsColumbia University School of Nursing, New York, NY, United States. Electronic address: seh2238@cumc.columbia.edu.
Alexandria L HahnColumbia University School of Nursing, New York, NY, United States.
Meghan DidierSisters by Heart, PO Box 599, Valley Center, CA, United States.
Caroline WalshIndependent Researcher, Quincy, MA, United States.
Veronica BarcelonaColumbia University School of Nursing, New York, NY, United States.
Katherine MeltonDepartment of General Pediatrics, Boston Children's Hospital, Boston, MA, United States.
Maureen GeorgeColumbia University School of Nursing, New York, NY, United States.

Funding

Reducing Health Disparities Through Informatics - Genomics SupplementT32NR007969 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI SUZANNE BAKKEN, Rebecca Schnall · 2002 to 2026
$7.9M
NINR NIH HHS T32 NR007969
6 · The paper itself

Abstract

backgroundSignificant perinatal health disparities exist between people with and without disability in the United States and Canada. However, less is known about the perinatal healthcare experiences of people with different types of disability in those countries. Understanding this experience is crucial for developing tailored interventions to improve perinatal health outcomes.

objectiveTo synthesize qualitative studies describing the perinatal healthcare experiences of people with physical, sensory, or cognitive disability in the United States and Canada.

methodsWe conducted a qualitative meta-synthesis following Sandelowski and Barroso's methods. Four databases and forward and backward citation searching were used to identify relevant studies in March 2024. Studies were appraised based on their reporting of Guba's essential criteria for trustworthy qualitative research. We coded qualitative findings and synthesized results into themes and subthemes. GRADE-CERQual was used to rate the level of confidence in each subtheme.

resultsTwenty-one studies describing the perinatal healthcare experiences of 225 people with disability were the basis of this synthesis. Three themes emerged: (1) Pervasive Ableism, (2) An Uninformed and Unaccommodating Experience, and (3) Resilience in the Face of Ableism.

conclusionsPeople with different types of disability shared similar perinatal healthcare experiences, including facing stigma, encountering clinicians with limited knowledge of disability and pregnancy, and demonstrating resilience through self-advocacy and support networks. Accessibility barriers and a lack of disability competency among clinicians were specific to each disability type. Future research should prioritize the development of interventions that promote perinatal health equity for people with disability.

Indexed as

Healthcare DisparitiesPerinatal CarePersons with DisabilitiesCanadaFemaleHumansPregnancyQualitative ResearchUnited StatesDisabilityMeta-synthesisNursing researchPerinatal health

Identifiers

PMID40175223
PMCPMC12145249

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.