Evidence map›Paper›PMID 40170051›Full record

ArticleConflict and health2025

Real ethics has dirty feet - data collector perspectives on risk exposure during data collection in conflict-affected Eastern DRC.

Stefan Jansen, Japhet Niyonsenga, Epaphrodite Nsabimana, Mediatrice Kagaba, Eugene Rutembesa, Henny Slegh, Bonaventure Mihigo, Jean Mutabaruka

Abstract read
In one paragraph

Article in Conflict and health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Stefan JansenMental Health and Behavior Research Group, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Japhet NiyonsengaMental Health and Behavior Research Group, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda. niyonsengajaphet74@gmail.com.
Epaphrodite NsabimanaMental Health and Behavior Research Group, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Mediatrice KagabaDepartment of Political Science, University of Rwanda, Kigali, Rwanda.
Eugene RutembesaMental Health and Behavior Research Group, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Henny SleghThe Director of International Programs at Living Peace Institute, Kinshasa, Democratic Republic of the Congo.
Bonaventure MihigoMental Health and Behavior Research Group, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Jean MutabarukaMental Health and Behavior Research Group, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.

Funding

Elrha's Research for Health in Humanitarian Crises (R2HC) Programme #32443
6 · The paper itself

Abstract

backgroundConducting research in humanitarian crisis settings poses multiple logistical and ethical challenges. We studied a community-based intervention called 'Living Peace Initiative', collecting household-based data in conflict-affected Eastern DRC, inevitably exposing data collectors and trial participants to risk.

objectiveThis study explores the perceptions of local study implementers on the ethics of collecting data in a humanitarian crisis setting.

methodsWe used a grounded theory qualitative research Approach. Structured individual interviews were conducted with data collectors (n = 19) and local data supervisors (n = 7). Interviews were audiotaped, transcribed and analyzed using thematic analysis, combining deductive and inductive coding. The analysis was structured around six predefined themes drawn from prior literature, field experiences, and discussions with research team members: motivation, personal safety, trial participant safety, accessibility and working conditions, emotional challenges, and field navigation.

resultsSeveral subthemes emerged. Motivation was reflected in scientific curiosity, professional growth, financial benefits, among others. Personal safety concerns included exposure to armed groups, road inaccessibility, harassment, and illness. Trial participant safety risks included armed conflict, IPV, stigma among others. Accessibility and working conditions were affected by harsh weather, poor infrastructure, network issues, and others. Emotional challenges included exposure to distressing narratives and secondary trauma. Field navigation strategies involved teamwork, and adaptation to local norms. Despite these challenges, data collectors and local data supervisors expressed that the risks were justified and worth taking.

conclusionEven when fully implementing international ethical guidelines, some risks in humanitarian crisis settings cannot be entirely foreseen or avoided. Local data supervisors and data collectors recognize these risks and take partial ownership in managing them as active agents and contributors to the research. In this sense, real ethics has dirty feet: Data collection in such settings cannot be entirely risk-free; but it still might be important to do the research. The decision to accept such risks however should not solely be made by external researchers who follow international ethical guidelines. It should also be informed by the local data collectors and supervisors who understand the risks within context and culture; and include their judgment on whether the research effort is worth doing.

Indexed as

Data collectorsEmotional riskEthical reflectionsField navigationMotivationsSafety

Identifiers

PMID40170051
PMCPMC11960016

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.