Evidence map›Paper›PMID 40169154›Full record

ArticleHospital pediatrics2025

Loss and Grief in Parents of Children Hospitalized for Congenital Heart Disease.

Erin Moorman, Conrad Williams, Jennifer Christofferson, Linda G McWhorter, Abigail C Demianczyk, Anne E Kazak, Allison Karpyn, Erica Sood

Abstract read
In one paragraph

Article in Hospital pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Erin MoormanDivision of Behavioral Health, Nemours Children's Health, Wilmington, Delaware.
Conrad WilliamsDepartment of Pediatrics, College of Medicine, Medical University of South Carolina Health System, Charleston, South Carolina.
Jennifer ChristoffersonCenter for Healthcare Delivery Science, Nemours Children's Health, Wilmington, Delaware.
Linda G McWhorterInstitute for Graduate Clinical Psychology, College of Health and Human Services, Widener University, Chester, Pennsylvania.
Abigail C DemianczykChildren's Behavioral Health and Neurosciences, Cleveland Clinic, Cleveland, Ohio.
Anne E KazakCenter for Healthcare Delivery Science, Nemours Children's Health, Wilmington, Delaware.
Allison KarpynCenter for Research in Education and Social Policy, Department of Human Development and Family Sciences, University of Delaware, Newark, Delaware.
Erica SoodDepartment of Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania.

Funding

Subproject Title: Clinical Research Education, Mentoring and Career Development CoreU54GM104941 · NIGMS · UNIVERSITY OF DELAWARE · PI Megan M Wenner · 2013 to 2026
$60.5M
Type 1 Together: A Peer Mentorship Program to Bolster use of Continuous Glucose Monitoring Systems among Adolescents with Type 1 DiabetesP20GM144270 · NIGMS · NEMOURS CHILDREN'S HOSPITAL, DELAWARE · PI MELISSA A. ALDERFER, CARISSA BAKER-SMITH · 2022 to 2026
$13.2M
NIGMS NIH HHS P20 GM144270NIGMS NIH HHS U54 GM104941
6 · The paper itself

Abstract

objectiveNondeath losses and experiences of grief can impact mental health but are understudied among parents of children with complex medical conditions. This study leverages online crowdsourcing, an approach that gathers diverse ideas by soliciting contributions from an online community, to characterize losses experienced by parents of children with congenital heart disease (CHD).

methodsEighty parents of children with CHD and a prior history of cardiac surgery and hospitalization across 44 US hospitals responded to open-ended questions on a private social networking site as part of a larger study. Data were coded and analyzed using a hybrid inductive-deductive approach, and themes regarding the ways that loss and grief were experienced by parents were identified.

resultsSix themes were identified: (1) loss of identity was an overarching theme that cut across the other themes; (2) loss of sense of security/predictability; (3) loss of "normal/healthy" pregnancy, birth, and child; (4) work/financial loss; (5) loss of parent-infant bonding and parenting experiences; and (6) loss of/impact on relationships. To support families with their experiences of nondeath losses, parent participants recommended that health care professionals acknowledge and normalize grief, provide memory and meaning-making opportunities, support parents in establishing a bond with their baby, facilitate parent participation in inpatient care, and offer general psychosocial support.

conclusionsAcknowledging and normalizing nondeath losses and grief is paramount to supporting families of children with CHD. A thorough understanding of the types of losses experienced is necessary to better support parents and promote healthy family and child outcomes.

Indexed as

Child, HospitalizedGriefHeart Defects, CongenitalParentsAdolescentAdultChildChild, PreschoolFemaleHospitalizationHumansInfantMaleSocial SupportUnited States

Identifiers

PMID40169154
PMCPMC12043405

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.