ArticleJournal of acquired immune deficiency syndromes (1999)2025
Integrating People With Lived Experience of Carceral System Involvement Into Research: Lessons Learned From Ending the HIV Epidemic Research Teams.
Article in Journal of acquired immune deficiency syndromes (1999), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Developing a conceptual framework for post-incarceration care for sexual and gender minoritized adults: a concept mapping study.AIDS care · 2026Article
- Barriers, beliefs, and biomedical prevention: a qualitative study of PrEP among justice-involved peripregnant women who use drugs.Health & justice · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
Abstract
backgroundThe National HIV/AIDS Strategy for the United States 2022-2025 emphasized carceral settings for the first time in the national strategy. Centering impacted people can take many forms and is critical to improving the HIV care continuum among people with carceral system involvement (CSI) to meet national Ending the HIV Epidemic goals.
methodsWe provide a narrative synthesis of the barriers and facilitators of including people with CSI in different aspects of the research process across 5 Ending the HIV Epidemic studies. Data were collected from each team using a data collection form with open-ended questions. A qualitative thematic analysis identified strategies, barriers, and facilitators across studies.
findingsMajor barriers to including people with CSI in research included institutional policies surrounding participant compensation and hiring practices, as well as a misalignment between the study objectives and the perceived needs of participants. Successful strategies for including people with CSI as part of the research team included providing training, support, and space for emotional processing and self-care to aid in managing the vicarious trauma and boundary setting that are unavoidable parts of this work. Successful strategies for including people with CSI as research participants include flexible research protocols and providing material support for participants in addition to cash payments for participation.
conclusionsIt is imperative to create sustainable and equitable, community-engaged research practices that continue to center CSI populations during their involvement in all aspects of HIV-related research studies.
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Registered trials
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