Evidence map›Paper›PMID 40158532›Full record

SynthesisJournal of the American Medical Directors Association2025

Live Hospice Discharge of Individuals with Cognitive Disabilities: A Systematic Review.

Victoria M Winogora, Christine E DeForge, Kimberlee Grier, Patricia W Stone

Abstract readSystematic Review
In one paragraph

Synthesis in Journal of the American Medical Directors Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Private Equity Ownership in Hospice Care: A Systematic Review (2012-2026).The American journal of hospice & palliative care · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Victoria M WinogoraColumbia University School of Nursing, New York, NY, USA. Electronic address: vmw2122@cumc.columbia.edu.
Christine E DeForgeColumbia University School of Nursing, New York, NY, USA.
Kimberlee GrierColumbia University School of Nursing, New York, NY, USA.
Patricia W StoneColumbia University School of Nursing, New York, NY, USA.

Funding

Systems Science and Comparative and Cost-Effectiveness Research Training for Nurse Scientists (S2CER2)T32NR014205 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI Lusine Poghosyan, Jingjing Shang · 2013 to 2026
$4.2M
Hospice Use, Hospice Quality, and Related End-of-Life Outcomes in Nursing HomesR01NR020601 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI Lara K Dhingra, Andrew Wylie Dick · 2023 to 2026
$2.7M
NINR NIH HHS R01 NR020601NINR NIH HHS T32 NR014205
6 · The paper itself

Abstract

objectivesTo systematically review the evidence on live hospice discharge for individuals with cognitive disabilities.

designSystematic review. SETTING AND

participantsAdults with cognitive disabilities enrolled in hospice in the United States.

methodsFollowing the Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) guidelines, we searched for US-based, English-language, and peer-reviewed literature focused on live discharges from hospice for individuals with cognitive disabilities. We searched PubMed, CINAHL, and Web of Science for articles published between January 1, 2014, through August 1, 2024. We used the Joanna Briggs Institute Analytical Cross-Sectional Studies Appraisal Tool to assess study quality.

resultsAfter screening 1543 titles and abstracts, we completed a full-text review of 30 articles, of which 8 met inclusion criteria. All included studies were cross-sectional analyses. The indications of cognitive disability varied (ie, dementia diagnosis, positive result on cognitive function assessment), but there were no studies focused on individuals with acquired brain injuries or intellectual and developmental disabilities, nor was the term cognitive disability used in any of the studies. In all studies, the indicator of cognitive disability was associated with live hospice discharge. Other risk factors included female sex (n = 4), minoritized race (n = 4), for-profit hospice ownership (n = 4), and delivery of hospice services at home (n = 2). In all studies, researchers found that individuals with cognitive disabilities had longer hospice lengths of stay. CONCLUSIONS AND IMPLICATIONS: This systematic review is the first to focus on live discharge from hospice for individuals with cognitive disabilities. All studies focused exclusively on individuals with dementias. Although the term cognitive disability was absent from the literature reviewed, cognitive disability was associated with live discharge. Future research should aim to include the greater cognitive disability community to assess hospice and other end-of-life outcomes to identify potential targets for future intervention.

Indexed as

Cognition DisordersHospice CareHospicesPatient DischargeCross-Sectional StudiesFemaleHumansMaleUnited Statesadult and older adultcognitive disabilitydementiaHospice and end-of-life care

Identifiers

PMID40158532
PMCPMC12162226

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.