ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2025
A look at caregivers for community-living persons with dementia: Implications for the GUIDE model.
Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Champion-Led Deprescribing for Persons with Dementia in Primary Care: A Qualitative Study in Accountable Care Organizations.Journal of general internal medicine · 2026Trial
- Care Partner Perspectives on Hypertension Management in Alzheimer Disease and Related Dementias in an Online Forum: Qualitative Thematic Analysis.JMIR nursing · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- Engaging patients with dementia, caregivers, and clinicians to study decisions about driving.Research involvement and engagement · 2025Article
- Family Caregiver Experiences Coordinating Care of Older Adults.JAMA network open · 2025Article
- Caregiving network precarity among community-living, dually enrolled persons with dementia.The Gerontologist · 2025Article
- A look at caregivers for community-living persons with dementia: Implications for the GUIDE model.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
introductionMedicare's new Guiding an Improved Dementia Experience (GUIDE) model funds integrated dementia care and related caregiver supports for community-living persons with dementia (PwD). Caregiver strain is a factor in provider payment and performance.
methodsWe examined national survey data on community-living PwD and their caregivers to identify which caregivers would receive support under GUIDE and characterize caregiver strain and use of supportive services.
resultsHalf of GUIDE-eligible PwD received care from multiple caregivers and high strain was common even among caregivers considered "low-complexity" under GUIDE. Use of role-related training, respite care, and support groups were low (11%, 18%, and 4%, respectively) and did not vary with caregiver strain. DISCUSSION: Caregiver identification and assessment standards under GUIDE may overlook a significant number of caregivers. To maximize impact, innovative models like GUIDE should align caregiver engagement and services with the unique realities of care networks for PwD. HIGHLIGHTS: Half of GUIDE-eligible persons with dementia have multiple caregivers. 32% of caregivers for community-living PwD report high strain. 11% of caregivers for community-living PwD received training and 18% used respite care.
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Registered trials
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