Evidence map›Paper›PMID 40154040›Full record

ArticleResearch in developmental disabilities2025

Quality of life in caregivers of toddlers with autism features.

Sarah R Edmunds, Daina M Tagavi, Colleen M Harker, Trent DesChamps, Wendy L Stone

Abstract read
In one paragraph

Article in Research in developmental disabilities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Prenatal exposure to paracetamol and risk of autism spectrum disorder: systematic review and meta-analysis of observational studies.Revista brasileira de ginecologia e obstetricia : revista da Federacao Brasileira das Sociedades de Ginecologia e Obstetricia · 2026
    Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Sarah R EdmundsUniversity of South Carolina, Department of Psychology, USA; University of Washington, Department of Psychology, USA. Electronic address: sredmunds@sc.edu.
Daina M TagaviUniversity of Washington, Department of Psychology, USA; University of Washington, Department of Psychiatry and Behavioral Sciences, USA.
Colleen M HarkerUniversity of Washington, Department of Psychology, USA; HARBOR Psychology, USA.
Trent DesChampsUniversity of Washington, Department of Psychology, USA.
Wendy L StoneUniversity of Washington, Department of Psychology, USA.

Funding

A Screen-Refer-Treat (SRT) Model to Promote Earlier Access to ASD InterventionR01MH104302 · NIMH · UNIVERSITY OF WASHINGTON · PI STONE, WENDY L. · 2014 to 2018
$4.3M
The Role of Vocal Complexity in Expressive Language Outcome: Developmental Course and Intervention Effects in Toddlers at Risk for ASD and Language ImpairmentF31DC015696 · NIDCD · UNIVERSITY OF WASHINGTON · PI EDMUNDS, SARAH R. · 2016 to 2017
$83k
NIDCD NIH HHS F31 DC015696NIMH NIH HHS R01 MH104302
6 · The paper itself

Abstract

Understanding factors that contribute to the quality of life (QoL) of primary caregivers of young autistic children can help researchers and clinicians provide high-quality support to caregivers and families. This study examined whether family demographic factors, parenting stress, and caregivers' perceptions of family-centered healthcare experiences uniquely predict caregivers' QoL. Participants were caregivers of toddlers with: features of autism (n = 119), other developmental delays (n = 101), and no developmental concerns (n = 264). We hypothesized that higher levels of perceived family-centered care would moderate (ameliorate) the relation between parenting stress and QoL. Higher levels of perceived family-centered care were associated with higher QoL for all groups but did not moderate the negative relation between parenting stress and QoL. Negative effects of parenting stress on QoL were stronger for caregivers of children with autism features compared to other groups. Future research is needed to determine how to provide additional support to caregivers with lower QoL, particularly caregivers who are experiencing income- or parenting-related stress and lower levels of family-centered care. Caregiver QoL is especially important to support across service settings (e.g., primary care, early intervention) during the birth-to-three period, when the process of accessing autism services can be challenging for caregivers.

Indexed as

Autism Spectrum DisorderAutistic DisorderCaregiversDevelopmental DisabilitiesParentingParentsQuality of LifeStress, PsychologicalAdultChild, PreschoolFemaleHumansInfantMaleMiddle AgedAutismCaregiverFamily-centered careParenting stressQuality of life

Identifiers

PMID40154040
PMCPMC12164539

What OpenQuestion holds

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LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.