ArticleJournal of pediatric rehabilitation medicine2025
The process of adaptation: Parents' journey navigating their child's chronic health condition diagnosis.
Article in Journal of pediatric rehabilitation medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
2 citing papers in PubMed.
- "It's a journey": Psychosocial perspectives on parenting a young child with esophageal atresia.Pediatric surgery international · 2026Article
- Parents' experiences of condition management in children born with esophageal atresia-tracheoesophageal fistula during their early childhood.Orphanet journal of rare diseases · 2026Article
Corrections and comments
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Authors and funding
2 authors.
Funding
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Abstract
PurposeThis study aimed to examine parents' perceptions and experiences navigating their child's chronic health condition diagnosis.MethodsResearchers used a qualitative research design, applying a phenomenological approach to interview 15 parents of children with a chronic health condition. Researchers analyzed verbatim transcripts to develop themes and report strategies that might inform care of the child and parents.ResultsParents described a fluid experience navigating their child's diagnosis that involved five interwoven elements: grief, anxiety, unknowing, responsibility, and positivity. Mediating processes of time and experience supported adaptation toward positivity. Experiences appeared to transcend child-specific diagnoses suggesting a common process of parent adaptation to a child's diagnosis.ConclusionFindings elucidate parents' lived experiences surrounding their child's diagnosis of a chronic health condition. Parents are inextricable from their child's care; thus, findings may garner knowledge supporting providers to employ strategies that support favorable outcomes for both children and parents.
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