Evidence map›Paper›PMID 40150899›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

Recommendations for a Communication Strategy to Support Informed Decision-Making About Self or Clinician Sampling for Cervical Screening in the UK: Qualitative Study.

Denitza Williams, Eleanor Clarke, Kate J Lifford, Lindsay Haywood, Fiona Wood, Jo Waller, Adrian Edwards, Natalie Joseph-Williams, Caroline Evans, Gareth Powell and 5 more

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Denitza WilliamsDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.
Eleanor ClarkeDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.
Kate J LiffordDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.
Lindsay HaywoodPublic Partner, UK.
Fiona WoodDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.ORCID 0000-0001-7397-4074
Jo WallerCentre of Cancer Screening, Prevention and Early Diagnosis, Wolfson Institute of Population Health, Queen Mary University of London, London, UK.ORCID 0000-0003-4025-9132
Adrian EdwardsDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.
Natalie Joseph-WilliamsDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.ORCID 0000-0002-8944-2969
Caroline EvansPublic Partner, UK.
Gareth PowellPHW Screening Laboratory, Public Health Wales, Cardiff, UK.
Rhiannon PhillipsCardiff School of Sport and Health Sciences, Cardiff Metropolitan University, Cardiff, UK.
Andrew Carson-StevensDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.
Katie WalbeoffCervical Screening Wales, Public Health Wales, Cardiff, UK.
Ardiana GjiniHywel Dda Health Board, NHS Wales, UK.
Kate BrainDivision of Population Medicine, School of Medicine, College of Biomedical and Life Sciences, Cardiff University and PRIME Centre Wales, Cardiff, UK.

Funding

This work was funded by Cancer Research UK (EDDPMA-May22\100057).
6 · The paper itself

Abstract

backgroundCervical screening for high-risk Human Papillomavirus subtypes is offered to those eligible in the UK via the NHS cervical screening programmes. However, uptake of cervical screening continues to remain below the national target of 80%. Groups less likely to participate include people from low socioeconomic groups, ethnic minority backgrounds, younger/older age and/or LGBTQ group identity. The cervical screening-eligible population could soon, for the first time in the UK, have a choice of mode between clinician taken or self-sampling.

aimsTo understand information and decision-support needs of diverse cervical screening-eligible individuals when presented with a choice of cervical screening mode and develop recommendations for a communication strategy to support informed decision-making.

methodsQualitative co-production explored communication preferences and decision-support needs in a diverse sample of cervical screening-eligible individuals using semi-structured interviews with individuals eligible for cervical screening (n = 30) and stakeholders (n = 23). Interviews were transcribed, thematically analysed and mapped to behavioural and decision-making theories to inform a communication strategy for offering choice in cervical screening mode in the UK.

resultsFour main themes across both participant groups were identified: misunderstanding of clinician screening, attitudes towards choice, communication launch preferences and decision-support needs. Logic models to inform a communication strategy in preparation for the future launch of choice in cervical screening mode in the UK were developed. IMPLICATIONS: The communication launch strategy can inform interventions to support informed decision-making if HPV self-sampling is incorporated into UK cervical screening programmes. PATIENT AND PUBLIC CONTRIBUTION: Two public partners were involved in the study from inception to completion. They advised on recruitment, participant facing documents and were involved in analysis.

Indexed as

CommunicationDecision MakingEarly Detection of CancerUterine Cervical NeoplasmsVaginal SmearsAdultAgedFemaleHumansInterviews as TopicMaleMass ScreeningMiddle AgedPapillomavirus InfectionsQualitative ResearchUnited Kingdombehaviour changecervical screeningcommunicationdecision supporthuman pappilomavirusself‐sampling

Identifiers

PMID40150899
PMCPMC11950154

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.