Evidence map›Paper›PMID 40140786›Full record

ArticleBMC nursing2025

Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review.

Ai Mardhiyah, Iyus Yosep, Sri Hendrawati, Windy Rakhmawati, Khoirunnisa Khoirunnisa, Theresia Eriyani, Rohman Hikmat

Abstract read
In one paragraph

Article in BMC nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Ai MardhiyahDepartment of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, Jawa Barat, Indonesia. ai.mardhiyah@unpad.ac.id.
Iyus YosepDepartment of Mental Health Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, Jawa Barat, Indonesia.
Sri HendrawatiDepartment of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, Jawa Barat, Indonesia.
Windy RakhmawatiDepartment of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, Jawa Barat, Indonesia.
Khoirunnisa KhoirunnisaDepartment of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, Jawa Barat, Indonesia.
Theresia EriyaniDepartment of Fundamental Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, Jawa Barat, Indonesia.
Rohman HikmatNursing Department, Faculty of Health Science, Universitas 'Aisyiyah Bandung, Bandung, Indonesia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThalassemia major is a chronic genetic disease requiring long-term treatment, significantly impacting the quality of life of affected children and their parents. Parents often experience emotional, social, and economic burdens in caring for children with thalassemia. Nursing interventions play a crucial role in improving their quality of life by providing holistic support. This scoping review aims to explore nursing interventions that enhance the quality of life of parents with children diagnosed with thalassemia major.

methodsA scoping review methodology was applied. Literature searches were conducted in CINAHL, PubMed, and Scopus, as well as Google Scholar. The primary keywords included "nursing intervention," "quality of life," "thalassemia," "parents," and "family support." Inclusion criteria comprised full-text, original research articles published in English from 2015 to 2024. Data extraction was performed manually, and qualitative descriptive analysis was used.

resultsNine studies met the inclusion criteria, discussing various nursing interventions to improve parental quality of life. Effective interventions included positive thinking therapy, family empowerment, counseling, and education, which enhanced parental knowledge, coping skills, emotional well-being, and overall quality of life. Key factors supporting intervention success included active parental participation, continuous healthcare support, and the availability of accessible educational resources.

conclusionThis study highlights the essential role of nurses in supporting parents of children with thalassemia. A holistic nursing approach is crucial in addressing the multifaceted needs of these parents. Further research should explore the long-term effectiveness of these interventions and their adaptation to individual family circumstances.

Indexed as

ChildrenInterventionParentsQuality of lifeThalassemia

Identifiers

PMID40140786
PMCPMC11948675

What OpenQuestion holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.