ReviewEuropean journal of epidemiology2025
Diagnostic accuracy in the Swedish national patient register: a review including diagnoses in the outpatient register.
Review in European journal of epidemiology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 101 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
101 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Quality of cancer-related data from the Danish National patient registry (1994-2025) and the Danish cancer registry (2004-2025): a systematic review.European journal of epidemiology · 2026Pooled it
- Timing of complementary food introduction is not associated with inflammatory bowel disease risk: A prospective birth cohort study.Inflammatory bowel diseases · 2026Article
- Expected survival is decreased in hereditary hemorrhagic telangiectasia: Results from a population-based registry study.Journal of internal medicine · 2026Article
- Article
- Academic achievement and socio-demographic differences in ADHD diagnosis: a population-based study of Swedish compulsory school pupils.Child and adolescent psychiatry and mental health · 2026Article
- Slowing disease accumulation but persistent complexity: population-level multimorbidity dynamics in old age.Age and ageing · 2026Article
- Declining rates of surgery in pediatric-onset inflammatory bowel disease: a Swedish nationwide register-based cohort study 2002-2022.Journal of Crohn's & colitis · 2026Article
- Socioeconomic Inequalities in Receipt of Curative-Intent Treatment and Survival After Surveillance-Detected Hepatocellular Carcinoma: A Nationwide Cohort Study.Alimentary pharmacology & therapeutics · 2026Article
- Mental health problems and suicidal behaviors in person-related work: a Swedish register-based cohort study.Scandinavian journal of work, environment & health · 2026Article
- 10-Year Trends in Heart Failure Among Patients With Dialysis and Nondialysis CKD.Kidney international reports · 2026Article
- Postnatal growth and childhood asthma in preterm and full-term twins: A cohort study.Pediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology · 2026Article
- Vedolizumab vs TNF Antagonists and Long-Term Outcomes in Ulcerative Colitis.JAMA network open · 2026Article
- Coronary angiography and reperfusion therapy following out-of-hospital cardiac arrest in women.Resuscitation plus · 2026Article
- SARS-CoV-2 infection and COVID-19 vaccination and the risk for new-onset type 1 diabetes: a register-based population study in Sweden.Diabetologia · 2026Article
- Risk of venous thromboembolism after SARS-CoV-2 vaccination-Evidence from genome-wide association study and population-based observational study.British journal of clinical pharmacology · 2026Observational
- Evidence for nephrolithiasis preceding sarcoidosis diagnosis: findings from a Swedish case-control study.Respiratory research · 2026Article
- Antihypertensive treatment and adverse psychiatric reactions in primary health care.Journal of human hypertension · 2026Article
- Excess risk of cardiovascular disease and mortality after amputation in type 2 diabetes: a nationwide population study from the Swedish National Diabetes Register.Cardiovascular diabetology · 2026Observational
- Comorbidity-adjusted life expectancy using comprehensive summary measures of medical history: nationwide, population-based study in Sweden.European journal of epidemiology · 2026Article
- Peripubertal pregnancies and associations with health and developmental outcomes in offspring during late adolescence and adulthood: sibling-comparison register study.International journal of epidemiology · 2026Article
41 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
backgroundThe Swedish National Patient Register (NPR) is an important source of data for epidemiological research. A review in 2010 described the validity of recorded diagnoses for inpatient care, but did not include specialised outpatient care.
methodUsing systematic searches of medical literature databases (Embase, Medline), and reports from members of the Swedish Epidemiological Association, we aimed to identify all studies validating diagnoses and procedure codes in inpatient care since 2010 and all studies validating specialised outpatient care. In addition, we summarize findings from register validation work performed by the National Board of Health and Welfare.
resultsThe literature search and personal reports generated 3990 non-duplicate original studies, of which 89 were deemed relevant. Compared to data in patient charts (reference), the median positive predictive value (PPV) for diagnostic codes in the NPR was 84% (interquartile range 72-93%), but with clear differences between types of diagnoses. The median PPV for surgical procedures was 97% (86-99%). The median sensitivity of diagnoses and procedures compared to other registers and cohorts was 73% (45-80%). The completeness of the register has improved over time. Missingness originates mainly from underreporting of procedures performed by private healthcare providers, and for certain variables, e.g. medication codes.
conclusionThe NPR has good diagnostic accuracy for most diagnoses and very good for surgical procedures. The sensitivity is lower. Longitudinal comparisons of incidence or prevalence are affected by changes in completeness. Missingness is low, although it is higher among private healthcare providers and for specific variables such as drug administration.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.