Evidence map›Paper›PMID 40135932›Full record

ArticleJournal of advanced nursing2025

Experiences of Sexual Health and Intimate Relationships in Women With Lipedema: A Qualitative Study.

Johanna Falck, Jan Mårtensson, Lise-Lotte Jonasson, Joanna Dudek, Annette Nygårdh

Abstract read
In one paragraph

Article in Journal of advanced nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Johanna FalckDepartment of Nursing Science, School of Health and Welfare, Jönköping University, Jönköping, Sweden.ORCID https://orcid.org/0000-0003-4292-5493
Jan MårtenssonDepartment of Nursing Science, School of Health and Welfare, Jönköping University, Jönköping, Sweden.ORCID https://orcid.org/0000-0002-7406-8732
Lise-Lotte JonassonDepartment of Nursing Science, School of Health and Welfare, Jönköping University, Jönköping, Sweden.ORCID https://orcid.org/0000-0002-0848-6098
Joanna DudekFaculty of Psychology in Warsaw, Center for Behavioral Research in Decision Making, SWPS University, Warsaw, Poland.ORCID https://orcid.org/0000-0002-7114-8884
Annette NygårdhFaculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.ORCID https://orcid.org/0000-0002-3187-8639

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo explore the experiences of sexual health and intimate relationships in women with lipedema.

designA qualitative interview study.

methodsSixteen women with lipedema recruited from a national lipedema association group in Sweden participated. Data were collected between October 2023 and February 2024 and analysed using content analysis.

resultsFour main categories were identified. Being burdened by body shame highlighted the women's body dissatisfaction, difficulties in self-acceptance and shame when being naked in front of their partners. Being hindered by an aching and heavy body captured the experiences of bodily pain and heaviness in intimate situations. Being torn between desire and avoidance revealed that the women longed for intimacy but adopted different strategies to avoid it. Being affected by what is said and what is left unsaid showed the role of the partner's approach as well as the strain of not discussing sexual problems with partners or healthcare providers.

conclusionWomen with lipedema experience physical, psychological and relational challenges in sexual life and intimacy. Still, these challenges remain unaddressed in healthcare settings. IMPLICATIONS FOR THE PROFESSION AND PATIENT CARE: Nurses and midwives should, in their unique role in encountering women throughout their lifespans, address and invite dialogues on sexual-related concerns of women affected by lipedema. IMPACT: The study findings provide insights into how lipedema affects women's sexual health and intimate relationships and offer new knowledge that can be applied when planning targeted interventions to promote the sexual health and well-being of women with lipedema. REPORTING

methodAdherence to the EQUATOR guidelines and COREQ checklist. PATIENT OR PUBLIC CONTRIBUTION: Two patient representatives from a lipedema association group contributed to this study by distributing study information to their members.

Indexed as

Interpersonal RelationsLipedemaSexual BehaviorSexual HealthSexual PartnersAdultAgedBody ImageFemaleHumansMiddle AgedQualitative ResearchSwedenchronic diseaseintimacylipedemanursingqualitative researchsexual healthstigmawomen's health

Identifiers

PMID40135932
PMCPMC12623691

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.