Evidence map›Paper›PMID 40130788›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2025

The Role of Specialised Medical ID Expertise in Care Consultations for People With Intellectual Disabilities: Experiences of Caregivers and Patients.

Marian E J Breuer, Esther J Bakker-van Gijssel, Tim Pelle, Jenneken Naaldenberg, Geraline L Leusink

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Article in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Marian E J BreuerDepartment of Primary and Community Care, Radboud University Medical Center, Research Institute for Medical Innovation, Nijmegen, the Netherlands.ORCID https://orcid.org/0000-0002-6955-0057
Esther J Bakker-van GijsselDepartment of Primary and Community Care, Radboud University Medical Center, Research Institute for Medical Innovation, Nijmegen, the Netherlands.ORCID https://orcid.org/0000-0002-7194-8734
Tim PelleDepartment of Primary and Community Care, Radboud University Medical Center, Research Institute for Medical Innovation, Nijmegen, the Netherlands.ORCID https://orcid.org/0000-0001-6862-5910
Jenneken NaaldenbergDepartment of Primary and Community Care, Radboud University Medical Center, Research Institute for Medical Innovation, Nijmegen, the Netherlands.
Geraline L LeusinkDepartment of Primary and Community Care, Radboud University Medical Center, Research Institute for Medical Innovation, Nijmegen, the Netherlands.

Funding

Academic collaborative Stronger on your own feet
6 · The paper itself

Abstract

backgroundThis study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice.

methodsFifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and skills, (2) communication between participants and the ID physician and (3) coordination between the ID physician and other professionals.

resultsSeven themes addressing the roles of the ID physician were identified. Five roles relate to actions and attributes during medical consultations: clinician, patient-centred doctor, holistic physician, human and sparring partner for the patient's network. Two roles relate to actions and attributes around medical consultations: coordinator and advocate.

conclusionsPatients with intellectual disabilities and their caregivers value ID physicians' roles beyond clinical skills during consultations, including roles related to care coordination, having a professional network and advocating in a broader context around medical consultations.

Indexed as

CaregiversClinical CompetenceIntellectual DisabilityPhysician-Patient RelationsPhysician's RoleReferral and ConsultationAdultAgedCommunicationFemaleHumansMaleMiddle AgedQualitative ResearchYoung Adultcontinuity of patient caredelivery of integrated healthcareintellectual disabilitylearning disabilitiesprimary healthcarespecialized healthcare

Identifiers

PMID40130788
PMCPMC11934841

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.