Development of an Online Training Course for Government Employees to Support Families With a Child With Profound Intellectual and Multiple Disabilities.

Siméon T A Lahaije, Jorien Luijkx, Aly Waninge, Annette A J van der Putten

Abstract read

In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it

0cells of the map it votes in

0citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Siméon T A LahaijeFaculty of Behavioural and Social Sciences, Inclusive and Special Needs Education, University of Groningen, Groningen, the Netherlands.ORCID https://orcid.org/0000-0002-7524-2253

Jorien LuijkxFaculty of Behavioural and Social Sciences, Inclusive and Special Needs Education, University of Groningen, Groningen, the Netherlands.ORCID https://orcid.org/0000-0003-2348-4637

Aly WaningeFaculty of Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, Groningen, the Netherlands.ORCID https://orcid.org/0000-0002-2316-2577

Annette A J van der PuttenFaculty of Behavioural and Social Sciences, Inclusive and Special Needs Education, University of Groningen, Groningen, the Netherlands.ORCID https://orcid.org/0000-0003-4226-8147

Funding

ZonMw

6 · The paper itself

Abstract

backgroundFamilies with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life.

methodA product to support these families was developed using the method of Design Thinking, which included parents filling out three different questionnaires.

resultsIt was found that parents preferred to be supported in strengthening their resilience and care capacity, specifically by improving the communication and (mutual) understanding between them and municipal government employees. An online training course for government employees was subsequently developed.

conclusionsThis study has led to the development of a product that can support families with a child with profound intellectual and multiple disabilities according to their needs and preferences. This study has also provided insights into how these parents prefer to be supported.

Indexed as

Children with DisabilitiesEducation, DistanceIntellectual DisabilityParentsSocial SupportAdultChildFemaleHumansMaledesign thinkingdisabilityfamily supportfamily well‐beingprofound intellectual and multiple disabilitiesservice delivery

Identifiers

PMID40129240

DOI10.1111/jar.70039

PMCPMC11933776

What OpenQuestion holds

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LicenceCC BY

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.