ArticleScientific reports2025
Caregiver burden of Alzheimer's disease among informal caregivers: a cross-sectional study in Malaysia.
Article in Scientific reports, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- The Effect of Caregiver Burden on Healthy Lifestyle Behaviours of People Caring for Patients With Alzheimer's Disease: A Cross-Sectional Study.Scandinavian journal of caring sciences · 2026Article
- Building a Dementia-Ready Workforce in Malaysia: Family Caregivers' Insights.Dementia (London, England) · 2026Article
- Burden in Informal Caregivers of Palliative Care Patients With Pressure Injuries: Perceived Social Support and Influencing Factors Care Burden in Palliative Caregivers.Journal of evaluation in clinical practice · 2026Article
- Understanding the Lived Experience and Bereavement of Caregivers of People with Alzheimer's Disease: A Mixed-Methods Study Protocol.Healthcare (Basel, Switzerland) · 2026Article
- Longitudinal investigation of psychological adaptation and its determinants in primary caregivers following thyroid cancer surgery.Frontiers in medicine · 2026Article
- Article
- Trajectories of family resilience among caregivers of older adults with dementia: a longitudinal study in community-based geriatric care settings.Frontiers in public health · 2026Article
- Challenges and coping strategies of family caregivers of older adults with dementia in Africa: a systematic review and meta-synthesis.BMC nursing · 2025Article
- Assessing the health-related quality of life in informal caregivers of Alzheimer's Disease: evidence from Malaysia.BMC palliative care · 2025Article
- Assessing quality of life-a scoping review of studies presenting quality of life instruments for informal caregivers of persons with dementia.BMC geriatrics · 2025Article
- Caregiver burden and anticipatory grief among family caregivers of patients with advanced cancer in a palliative context: chain mediating role of social support and positive coping.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
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8 authors.
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Abstract
Alzheimer's disease (AD) not only impacts the patients but substantially informal caregivers in terms of physical and psychological burden. This study aims to determine the burden level of informal caregivers of patients with different stages of AD and use of special accommodation (SpA) along with its predictors. A cross-sectional study was conducted by interviewing AD patients and informal caregivers recruited from 4 tertiary hospitals. Zarit Burden Interview (ZBI) was used to estimate caregivers' burden. The analysis categorized informal caregivers of AD patients into two groups based on the use of SpA. Multivariable linear regression was employed to identify potential determinants of subjective caregiver burden. As a result, caregivers' burden experienced by informal caregivers of severe community-dwelling AD patients was significantly higher (p = 0.024) than those with special accommodation. As AD advanced, caregivers' burden was elevated significantly (p = 0.021) from mild to severe AD among community-dwelling patients. In multivariable analysis, severe AD (standardised β = 0.187, p = 0.047 vs. mild AD) and spousal relationship (standardised β = 0.241, p = 0.026 vs. other relationships) were found to be significant factors in predicting caregivers' burden. Hence, the physical and social needs of informal caregivers must not be overlooked. Severe AD significantly increased caregiver burden in community dwelling patients. Spousal caregivers report a higher perceived burden compared to caregivers with other relationships. Policymakers need to recognize and address the substantial demands placed on informal caregivers by providing essential social support. Special accommodation could alleviate the burden on informal caregivers, particularly those caring for patients with severe AD.
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