ArticleMedicine2025
Psychosocial support and care for children with special healthcare needs and their families: A scoping review for enhancing the care system.
Article in Medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed.
- Research Trends and Hot Topics in Nursing Research on Children with Disabilities: A Bibliometric Analysis from 1977 to 2026.Healthcare (Basel, Switzerland) · 2026Article
- Exploration of the relationships between health literacy and experience of care integration in parents of children with special healthcare needs: a cross-sectional study.BMC health services research · 2026Article
- Caregiver-reported experience of integrated care for children with special health care needs and its sociodemographic, health- and network-related correlates in Germany: Cross-sectional results from the PART-CHILD cohort.BMC health services research · 2026Article
- Coping as a mediator between family stressors and behavioural adjustment in siblings of children with progressive life-limiting conditions: a multilevel longitudinal study.BMC pediatrics · 2026Article
- Psychometric properties and validation of the Malawian Cerebral Palsy Quality of Life-child (CP QoL-Child) questionnaire for primary caregivers.Malawi medical journal : the journal of Medical Association of Malawi · 2026Article
- Effect of requiring advanced respiratory support on disaster-related anxiety among caregivers of children with medical complexity: a cross-sectional study.BMC public health · 2026Article
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- The assessment of continuity of care and care coordination for Children and Youth with Special Health Care Needs (CYSHCN): a cross-sectional descriptive study in Northeastern Italy.Italian journal of pediatrics · 2025Article
- Risk and Protective Factors Associated with Increased Burden in Caring for Children: An Observational Study of Japanese General Households.Pediatric reports · 2025Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundAdvances in medical technology have increased the identification of children with special healthcare needs (CSHCN), indicating the need to strengthen care systems. However, existing systematic reviews are outdated, over a decade old, and narrowly focused-primarily on hospital-based comprehensive care programs and family-centered care. This scoping review aimed to organize and integrate existing findings on care and support for CSHCN and their families from the available literature.
methodsWe employed an extensive search in December 2023, utilizing databases such as PubMed, Web of Science, CINAHL, ERIC, and The Cochrane Library. Selected articles were thoroughly reviewed, categorized, and organized by the type of care and support addressed. The findings of the included studies were organized and integrated descriptively.
resultsFollowing a comprehensive search and screening process, 49 articles were selected and categorized into 5 themes: care systems based on hospitals and other specialized institutions, specialized personnel or programs for care coordination/integrated care, support using telehealth technology to enhance and facilitate care, care aimed at reducing the psychological burden on the child and family, and peer and group support emphasizing the role of family and community. Publication years ranged from 1998 to 2023. The studies were conducted in 7 countries, predominantly in the United States, with additional studies from Canada, Australia, the United Kingdom, Japan, India, and Belgium.
conclusionsThis study underscores the importance of establishing effective care systems that ensure continuous and smooth care coordination from multiple perspectives for the well-being of CSHCN and their families. To enhance support systems for the well-being of CSHCN and their families, it is necessary to pursue a multi-faceted approach that facilitates continuous and smooth care coordination from various perspectives.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.