Evidence map›Paper›PMID 40127970›Full record

ArticleAnnals of family medicine2025

Feasibility and Acceptability of the "About Me" Care Card as a Tool for Engaging Older Adults in Conversations About Cognitive Impairment.

Stuart W Grande, Mikele Epperly, Karynn Yee-Huey Tan, Supriya Yagnik, Michael Ellenbogen, Jane Pederson, Alberto Villarejo-Galende, Rae Lynn Ziegler, Greg Kotzbauer

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Article in Annals of family medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

9 authors.

Stuart W GrandeUniversity of Minnesota School of Public Health, Minneapolis, Minnesota sgrande@umn.edu.ORCID 0000-0002-6796-7991
Mikele EpperlyF. Hoffmann-La Roche Ltd, Basel, Switzerland.
Karynn Yee-Huey TanRoche Pharmaceuticals, Selangor, Malaysia.
Supriya YagnikGenentech, Inc, South San Francisco, California.
Michael EllenbogenInternational dementia advocate and connecter.
Jane PedersonStratis Health, Minneapolis, Minnesota.
Alberto Villarejo-GalendeDepartment of Neurology, Hospital Universitario 12 de Octubre, Instituto de investigación Imas12, Madrid, Spain.
Rae Lynn ZieglerRetired, Pinehurst, North Carolina.
Greg KotzbauerMorph Studio, Durham, North Carolina.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeWe aimed to address fears and lived experiences of cognitive decline among adults via whole-person conversations that elicit problems and goals that matter most to patients. Currently, 6.7 million Americans have Alzheimer disease or related dementias, with an additional 28 million people reporting subjective cognitive decline-a possible indicator of Alzheimer disease and related dementias. A review of tools for older adults with cognitive impairment showed strong clinical specificity, with insufficient whole-person support for patients. We developed and tested the feasibility and acceptability of a tool to enhance conversations for adults with cognitive impairment at the point of care.

methodsWe conducted a feasibility study to build a conversation tool, guided by principles of shared decision making, called the "About Me" Care Card. Informed by an environmental scan, we created and pilot-tested prototypes at implementation sites. All phases were overseen by a multidisciplinary steering committee.

resultsFourteen diverse clinicians consisting of 7 clinician types across 7 institutions piloted the card during in-person visits or by telephone. Observations showed that the card (1) allowed time to elicit what matters most to patients, (2) created space for personalized care conversations, (3) opened an examination of social care needs, and (4) moderated emotional relationships between families and individuals.

conclusionA community-based codesign process led to a feasible tool for primary care teams to facilitate whole-person conversations with aging adults. The About Me Care Card appeared to broaden conversations compared with routine care. More work is needed to determine scalability and effects on outcomes.

Indexed as

Cognitive DysfunctionCommunicationDecision Making, SharedPhysician-Patient RelationsAgedFeasibility StudiesFemaleHumansMaleMiddle AgedAlzheimer diseasecognitive healthdecision supportdementiashared decision making

Identifiers

PMID40127970
PMCPMC11936360

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.