Evidence map›Paper›PMID 40125369›Full record

ArticleHealth equity2024

Overcoming Research Mistrust in African American Communities by Engaging Community Members as Research Team Members: Challenges and Opportunities.

Melissa Ryan, Travaé Hardaway Griffith, Grace Okoro, Tiffany Osborne, Lori Brand Bateman, Janet M Turan, Raegan W Durant, Lece Webb, Mona N Fouad, Gabriela R Oates

Abstract read
In one paragraph

Article in Health equity, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
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  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Melissa RyanHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.ORCID https://orcid.org/0009-0007-4659-7905
Travaé Hardaway GriffithHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Grace OkoroHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Tiffany OsborneHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Lori Brand BatemanHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Janet M TuranSchool of Public Health, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Raegan W DurantHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Lece WebbHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Mona N FouadHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Gabriela R OatesHeersink School of Medicine, University of Alabama at Birmingham, Birmingham, Alabama, USA.ORCID https://orcid.org//0000-0003-4052-1524

Funding

Reducing Ethical and Social Prejudicial Effects of COVID-19 Testing in Underserved Populations (RESPECT-UP)U01MD017432 · NIMHD · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI DURANT, RAEGAN WINSTON, OATES, GABRIELA R · 2022 to 2023
$1.2M
NIMHD NIH HHS U01 MD017432
6 · The paper itself

Abstract

Objectives: We aimed to understand factors surrounding COVID-19 testing in vulnerable urban and rural African American communities in Alabama, which are characterized by mistrust in medical research. Methods: To address widespread mistrust, we trained lay community members as research coordinators (Community Engagement Coordinators-CECs) and employed them for study recruitment and data collection. We then explored their experiences through group discussions and individual interviews. Results: Ten CECs (8 in Jefferson, 2 in Dallas County; 8 female, 2 male) completed 5 h of instructor-led training followed by virtual Collaborative Institutional Training Initiative (CITI) Human Subjects Training. In 11 weeks, CECs recruited 318 study participants and administered 303 surveys. After survey data collection was completed, CECs recruited survey respondents for participation in focus groups, enrolling 53 individuals. CECs continued their study engagement by reviewing developed study products. Conclusions: Engaging CECs as research personnel facilitated successful completion of planned enrollment with minimal missing data. Investing in communities by training and employing community members as study personnel can help overcome research mistrust and promote support for research and public health interventions.

Indexed as

community engagementcommunity health workersCOVID-19research mistruststudy recruitment

Identifiers

PMID40125369
PMCPMC11465749

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.