Evidence map›Paper›PMID 40123182›Full record

ArticleJournal of aging and health2025

Resigned but Resilient: Caregiver Perceptions of Role Ambiguity and Quality of Care During Hospital-to-Home Transitions of Older Latinos Living With Dementia.

Sylvan Greyson, Maningbe Keita, Rhea Sharma, Sevil Yasar, Cynthia Boyd, Sarah Keller, Ayse Gurses, Quincy Samus, Alicia Arbaje

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of aging and health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Sylvan GreysonDivision of Geriatric Medicine and Gerontology, Department of Medicine, Center for Transformative Geriatrics Research, Johns Hopkins University, Baltimore, MD, USA.ORCID 0000-0003-0160-8029
Maningbe KeitaDivision of Geriatric Medicine and Gerontology, Department of Medicine, Center for Transformative Geriatrics Research, Johns Hopkins University, Baltimore, MD, USA.
Rhea SharmaDivision of Geriatric Medicine and Gerontology, Department of Medicine, Center for Transformative Geriatrics Research, Johns Hopkins University, Baltimore, MD, USA.
Sevil YasarDivision of Geriatric Medicine and Gerontology, Department of Medicine, Center for Transformative Geriatrics Research, Johns Hopkins University, Baltimore, MD, USA.
Cynthia BoydDivision of Geriatric Medicine and Gerontology, Department of Medicine, Center for Transformative Geriatrics Research, Johns Hopkins University, Baltimore, MD, USA.
Sarah KellerDivision of Infectious Diseases, Johns Hopkins University, Baltimore, MD, USA.
Ayse GursesDepartment of Health Policy and Management, Johns Hopkins University, Baltimore, MD, USA.
Quincy SamusSchool of Nursing, Johns Hopkins University, Baltimore, MD, USA.
Alicia ArbajeDivision of Geriatric Medicine and Gerontology, Department of Medicine, Center for Transformative Geriatrics Research, Johns Hopkins University, Baltimore, MD, USA.ORCID 0000-0002-3224-3942

Funding

The Johns Hopkins Alzheimer's Disease Resource Center for Minority Aging Research - Research Ed ComponentP30AG059298 · NIA · JOHNS HOPKINS UNIVERSITY · PI Joseph John Gallo, ROLAND J. THORPE · 2018 to 2026
$7.1M
Medication Management During Hospital-to-Home Transitions of Older Adults with Alzheimer's Disease and Related Dementias (ADRD)R03AG063083 · NIA · JOHNS HOPKINS UNIVERSITY · PI ARBAJE, ALICIA INES · 2019 to 2020
$328k
NIA NIH HHS P30 AG059298NIA NIH HHS R03 AG063083
6 · The paper itself

Abstract

ObjectivesHospital-to-home transitions are high-risk periods, especially for Latinos living with dementia. Cultural differences may exacerbate role ambiguity-unclear patient/caregiver/provider roles. The objective was to elicit views on role ambiguity and care quality during hospital-to-home transitions of older Latinos with dementia and categorize factors shaping healthcare-related task distribution.MethodsQualitative study using semi-structured interviews with caregivers of older Latinos with dementia.ResultsInterviews with 21 caregivers indicated 1) concern about over-medication, 2) resignation over limited medication effectiveness, 3) scarcity of culturally specific resources, 4) wariness to trust medical institutions, and 5) aversion to institutional care. Factors shaping healthcare-related tasks were geographic proximity, gender roles, relationship to patient, English fluency, and work schedules.DiscussionCaregivers felt disillusioned and unsupported during care transitions. Findings suggest healthcare professionals and advocacy organizations should carefully consider efforts to connect caregivers to sources of culturally tailored, home-based support, and they could engage in concerted efforts to earn trust.

Indexed as

CaregiversDementiaHispanic or LatinoQuality of Health CareAgedAged, 80 and overFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchUnited Statescultural competencydementiahealth equityHispanic or Latinopatient medication knowledgequalitative researchtransitional care

Identifiers

PMID40123182
PMCPMC13104599

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.