Evidence map›Paper›PMID 40122562›Full record

ArticleBMJ open2025

Patient-centered outcomes on preparing for and undergoing gender-affirming phalloplasty: a qualitative, descriptive study.

Nnenaya Mmonu, Asa Radix, Elijah Castle, Lee Zhao, Rachel Bluebond-Langner, Clarissa Ospina-Norvell, Daphna Harel, Mark Fendrick, Tenny R Zhang, Carolyn A Berry

Abstract read
In one paragraph

Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Exploring experiences of metoidioplasty: A qualitative study.International journal of transgender health · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Nnenaya MmonuUrology, New York University, New York, New York, USA nnenaya.mmonu@nyulangone.org.ORCID http://orcid.org/0000-0003-4620-8897
Asa RadixCallen-Lorde Community Health Center, New York, New York, USA.
Elijah CastleHunter College, New York, New York, USA.
Lee ZhaoNYU Grossman School of Medicine, New York, New York, USA.
Rachel Bluebond-LangnerNYU Grossman School of Medicine, New York, New York, USA.
Clarissa Ospina-NorvellSan Francisco Community Health Center, San Francisco, California, USA.
Daphna HarelNYU, New York, New York, USA.
Mark FendrickUniversity of Michigan, Ann Arbor, Michigan, USA.
Tenny R ZhangCornell University Weill Cornell Medicine, New York, New York, USA.
Carolyn A BerryNYU Grossman School of Medicine, New York, New York, USA.

Funding

Institutional Career DevelopmentKL2TR001446 · NCATS · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI PILLINGER, MICHAEL · 2015 to 2025
$6.7M
NCATS NIH HHS KL2 TR001446
6 · The paper itself

Abstract

objectiveDespite increasing incidence of genital gender-affirming surgery (GGAS), there is no systematic method of evaluating patient perspectives. The objective of this study is to elucidate transgender and non-binary patient perspectives on gender-affirming phalloplasty/metoidioplasty via structured focus groups and determine convergent themes as the first step towards the development of a GGAS patient-reported outcome measure.

designWe conducted a systematic qualitative study using a thematic content analysis of four focus groups from April 2021 to April 2022 comprising 8 patients undergoing phalloplasty/metoidioplasty and 10 patients post-phalloplasty/metoidioplasty. Focus groups were hosted virtually and recorded and transcribed. Discussions were guided by participant input and focused on goals, experiences, outcomes, satisfaction, and quality of life.

settingThis volunteer but purposive sample of patients was recruited directly in clinic, via email, and via social media at NYU Langone Health (primary site), Callen-Lorde Community Health Center (New York, New York, USA) and the San Francisco Community Health Center.

participantsWe conducted focus groups with 18 patients before/after undergoing gender-affirming phalloplasty/metoidioplasty. PRIMARY AND SECONDARY OUTCOME MEASUREMENTS AND STATISTICAL ANALYSIS: Transcripts were uploaded into ATLAS.ti, a qualitative data analysis software that facilitates coding for thematic content analysis. We performed deductive and inductive coding to identify the themes that were clustered into overarching domains.

resultsThe mean duration of focus groups was 81.5 min. Seven themes and 19 subthemes were constructed. The major themes were (1) goals, expectations, and priorities before/after surgery; (2) sexual function; (3) urinary function; (4) peer support; (5) decision-making; (6) mental health and quality of life; and (7) gender dysphoria. Of the major themes, those determined before the study included themes 1-3 and 6-7. Limitations include small sample size and bias in patient selection.

conclusionsWe conducted focus groups with 18 patients before/after undergoing gender-affirming phalloplasty/metoidioplasty. Mental health, quality of life, functional, and aesthetic outcomes are all critical to patients. Phalloplasty/metoidioplasty impact numerous aspects of patients' lives. Experiential components of the surgical process, mental health, and quality of life are important metrics to consider in addition to functional and aesthetic outcomes.

Indexed as

Gender-Affirming SurgeryPatient Reported Outcome MeasuresPenisTransgender PersonsAdultFemaleFocus GroupsHumansMaleMiddle AgedPatient SatisfactionPhalloplastyQualitative ResearchQuality of LifeAdult urologySexual dysfunctionUROLOGY

Identifiers

PMID40122562
PMCPMC11934403

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.