Evidence map›Paper›PMID 40114133›Full record

ArticleBMC palliative care2025

How to define and quantify a bad death in palliative home care? Across-sectional and exploratory study using Canadian interRAI data.

Amanda Mofina, Nicole Williams, John P Hirdes, Gary Cheung, James Downar, Kieran L Quinn, Dawn M Guthrie

Abstract read
In one paragraph

Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Amanda MofinaSchool of Public Health Sciences, University of Waterloo, Waterloo, ON, Canada. amofina@uwaterloo.ca.
Nicole WilliamsDepartment of Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo, ON, Canada.
John P HirdesSchool of Public Health Sciences, University of Waterloo, Waterloo, ON, Canada.
Gary CheungDepartment of Psychological Medicine, School of Medicine, The University of Auckland, Auckland, New Zealand.
James DownarDivision of Palliative Care, Department of Medicine, University of Ottawa and Bruyere Research Institute, Ottawa, ON, Canada.
Kieran L QuinnTemmy Latner Centre for Palliative Care, Department of Medicine, Sinai Health System, University of Toronto, Toronto, ON, Canada.
Dawn M GuthrieDepartment of Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo, ON, Canada.

Funding

Health Canada 2324-HQ-000094
6 · The paper itself

Abstract

backgroundDying is a complex process comprised of physical, social, cultural, spiritual, environmental, and interpersonal relationship factors that contribute to both good and bad death experiences. Bad deaths have historically been explored with a qualitative lens. This study aimed to identify key indicators of a bad death and examine predictors for each indicator using population-level data.

methodsThis cross-sectional study analyzed routinely collected clinical and sociodemographic data using the Resident Assessment Instrument for Home Care (RAI-HC) between April 2007 and March 2020. 16,586 home care clients aged 18 years and older who died and had an assessment completed within 30 days of their death were included. Four indicators of a bad death were examined: self-reported loneliness, severe depressive symptoms, daily pain that is horrible or excruciating, and pain that is severe/excruciating and uncontrolled by medications. These indicators were interRAI specific variables that captured common bad death constructs in the existing literature. The study sample was separated into groups based on these four indicators and each individual could populate more than one group. Chi-square analyses were used to examine the relationship between potential risk factors and each bad death indicator.

resultsOf the total sample, 50.9% were 85 + years of age, and 54.7% were female. The prevalence of experiencing at least one of the bad death indicators was 33.5%. Each indicator significantly increased the likelihood of experiencing one of the other indicators with the ORs ranging from 1.70 to 3.26. Other important predictors that increased the odds of experiencing each bad death indicator included: any psychiatric diagnoses (OR range: 1.29-1.89), experiencing conflict with family or friends (OR range: 1.21-3.40), and a decline in social interaction which was distressing to the person (OR range: 2.06-3.70).

conclusionsThese four bad death indicators were common among community-dwelling adults. This study found that there was an interconnectedness between the bad death indicators. Clinically, the relationship between these indicators means that addressing one aspect of a bad death may positively influence the others. Early identification of these issues, along with client and family collaboration, can aid in optimizing the likelihood of a good death.

Indexed as

Attitude to DeathHome Care ServicesPalliative CareAdultAgedAged, 80 and overCanadaCross-Sectional StudiesFemaleHumansMaleMiddle AgedSurveys and QuestionnairesBad deathDepressionInterRAILonelinessPain

Identifiers

PMID40114133
PMCPMC11924875

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.