Evidence map›Paper›PMID 40113649›Full record

ArticlePrenatal diagnosis2025

'I Have my Beliefs, but Then I Have my Reality': Reflections of Black and South Asian Parents Living in England on Screening and Genetic Diagnosis in Pregnancy.

Michelle Peter, Rashida Baptiste, Rachael Buabeng, Lily Islam, Jane Fisher, Kerry Leeson-Beevers, Melissa Hill, Lyn S Chitty

Abstract read
In one paragraph

Article in Prenatal diagnosis, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Michelle PeterNorth Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.ORCID 0000-0002-4977-8708
Rashida BaptisteNorth Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Rachael BuabengMummy's Day Out, London, UK.
Lily IslamEast London Community Centre, London, UK.
Jane FisherAntenatal Results and Choices, London, UK.ORCID 0000-0003-1318-0074
Kerry Leeson-BeeversAlström Syndrome UK, Torquay, UK.
Melissa HillNorth Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.ORCID 0000-0003-3900-1425
Lyn S ChittyNorth Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.ORCID 0000-0002-4857-7138

Funding

NIHR Great Ormond Street Hospital Biomedical Research Centre 23SH13
6 · The paper itself

Abstract

objectivesBlack and South Asian women in the UK face disproportionately worse pregnancy and maternal outcomes. Yet, they are underrepresented in research. Understanding their attitudes towards prenatal tests (screening tests and diagnostic genetic tests) is critical for offering equitable prenatal care.

methodsFocus groups examined attitudes towards prenatal testing amongst Black and South Asian parents. Discussions were analysed using reflexive thematic analysis.

resultsTwelve Black and 15 South Asian parents participated in four focus groups. Four themes were identified: 'The desire for information', 'The circle of trust', 'Faith and culture as navigators', and 'Knowledge and understanding of genetics'. Black and South Asian parents were open to prenatal screening tests, valuing the information about their baby's health. However, most opposed invasive testing because of the risks of harm to the baby. Wanting to be prepared, trust in healthcare, family influence and understanding of genetics shaped attitudes. Faith played a significant and varied role, with Muslim and Christian beliefs influencing decision-making.

conclusionThis study underscores the need for culturally respectful prenatal care and the importance of building trust between healthcare services and Black and South Asian communities. It also highlights the value of including people from underrepresented populations in research for supporting health equity.

Indexed as

Black PeopleGenetic TestingHealth Knowledge, Attitudes, PracticeParentsPrenatal DiagnosisSouth Asian PeopleAdultEnglandFemaleFocus GroupsHumansMalePregnancy

Identifiers

PMID40113649
PMCPMC12180570

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.