Evidence map›Paper›PMID 40108511›Full record

ArticleBMC geriatrics2025

Key informants' perceptions of telehealth palliative care for people living with dementia in nursing homes.

Joan G Carpenter, Laura C Hanson, George Demiris, Nancy Hodgson, Mary Ersek

Abstract read
In one paragraph

Article in BMC geriatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Joan G CarpenterUniversity of Maryland School of Nursing, Baltimore, USA. joan.carpenter@umaryland.edu.
Laura C HansonDivision of Geriatric Medicine and Palliative Care Program, University of North Carolina Chapel Hill, North Carolina, USA.
George DemirisUniversity of Pennsylvania School of Nursing, Philadelphia, USA.
Nancy HodgsonUniversity of Pennsylvania School of Nursing, Philadelphia, USA.
Mary ErsekCorporal Michael J. Crescenz Veterans Affairs Medical Center, Philadelphia, USA.

Funding

Training Core (I)U54AG063546 · NIA · BROWN UNIVERSITY · PI Vincent Mor · 2019 to 2026
$125.9M
National Institute on Aging (NIA) of the National Institutes of Health under Award Number U54AG063546NIA NIH HHS U54 AG063546
6 · The paper itself

Abstract

backgroundStudies have shown that palliative care delivered to people living with dementia (PLWD) in nursing homes (NHs) improves care quality and reduces potentially burdensome treatments. However, access to palliative care services in NHs is uncommon. Telehealth may extend the reach of specialty palliative care consultation, yet strategies for feasible and acceptable NH implementation remain unknown. During implementation of an embedded pragmatic pilot clinical trial for PLWD, we aimed to describe key informants' perceptions of a NH telehealth palliative care intervention.

methodsGuided by the Practical Implementation Sustainability Model (PRISM), we engaged key informants in 30-60-minute focus groups and individual semi-structured interviews to understand barriers and facilitators to implementation of a NH telehealth palliative care intervention in one NH. Interview prompts addressed contextual factors that influenced outcomes. Interviews were conducted and recorded via videoconference, transcribed, and analyzed using the Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework.

resultsParticipants (n = 14) included NH administrators and other leaders, palliative care providers, telehealth representatives, dementia advocates, a care partner, and a PLWD. Identified barriers to implementation included stigma surrounding dementia, palliative care, and NHs; multiple logistical pieces required to implement the intervention; inflexibility of palliative care providers to meet NH needs; and inability to assess residents in person. Facilitators included convenient, user-friendly and readily available telehealth equipment, and NH staff presence during visits. Outcomes most relevant to the key informants were increased goals of care conversations, improved symptom management and quality of life, and decreased health care utilization. Suggested adaptations included increased family engagement in the logistics of the intervention and strong NH advocacy.

conclusionsIn this study, key informants provided feedback that barriers to implementing NH telehealth palliative care far outweighed the facilitators for uptake. Future work will focus on employing NH staff in user centered design to overcome barriers such as optimal timing for consults and/or scheduled consult days to fit NH workflow, assessing organizational readiness for implementing change, and identifying dementia-specific and palliative care education needs.

Indexed as

DementiaNursing HomesPalliative CarePerceptionTelemedicineAgedFemaleFocus GroupsHumansMalePilot ProjectsDementiaNursing homesPalliative careSupportive careTelehealth

Identifiers

PMID40108511
PMCPMC11921693

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.