ArticleScandinavian journal of caring sciences2025
'You Have to Be Well, to Be Sick'-A Qualitative Study of Young Adults' Experiences of Undergoing Liver Transplantation.
Article in Scandinavian journal of caring sciences, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundCompared to children or older adults, young adults (age 18-29) who undergo liver transplantation are more likely to have poor psychological health and a higher risk of graft failure. Understanding patient needs and perspectives is important for caring for young adults and improving long-term health outcomes. AIMS AND
objectivesTo (1) understand young liver recipients' experiences, needs and views throughout the transplantation process and (2) identify possible improvements in their care. METHODOLOGICAL DESIGN AND JUSTIFICATION: Three focus group interviews were conducted to investigate young people's experiences. ETHICAL ISSUES AND APPROVAL: The study was performed in compliance with the Helsinki Declaration and was approved by the Danish Data Protection Agency (P-2020-559). RESEARCH
methodsTen young liver recipients (aged 19-34) who had received a liver transplantation aged 18-29 at Rigshospitalet, Copenhagen University Hospital, Denmark were divided into three focus groups. The focus groups were carried out and transcribed. INSTRUMENTS AND/OR
interventionsWe have adhered to relevant EQUATOR guidelines in accordance with COREQ.
resultsData was analysed thematically. We identified three main themes: (1) Balancing illness and youth, (2) Being mentally resourceful and (3) Facing a new kind of chronic illness. We found that young liver recipients struggled with the conflict between youth and chronic illness, even after transplantation. To address this, they emphasised the need for more age-appropriate information and improved mental support from healthcare professionals or peers. STUDY LIMITATIONS: Because liver transplantation is a rare outcome, especially among the younger population, this study could include only a small group of participants.
conclusionOur findings indicate that young liver transplant recipients are a vulnerable group who would benefit from specialised care, emphasising mental support before and after the transplant, along with transparent and honest communication.
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