ArticleBritish journal of health psychology2025
Development of the COMPASS model of endometriosis: A COmprehensive model of pain encompassing agency, systemic factors and sense making.
Article in British journal of health psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Selected Parameters of the Mental State of Women with Endometriosis-A Systematic Review.Journal of clinical medicine · 2026Review
- Article
- Article
- An Evaluation of Polish Women's Knowledge of Perineal Incision: A Cross-Sectional Study.Journal of clinical medicine · 2025Article
- Development of the COMPASS model of endometriosis: A COmprehensive model of pain encompassing agency, systemic factors and sense making.British journal of health psychology · 2025Article
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3 authors.
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Abstract
objectivesEndometriosis is a chronic and progressive condition commonly associated with debilitating pain. Treatments for endometriosis pain are limited and usually invasive. Psychological interventions are a non-invasive intervention option and have proven benefits in chronic pain. Yet, psychological interventions for endometriosis pain are scant and of limited efficacy, which may be due to gaps in our understanding of endometriosis pain experiences. We sought to expand current understandings of endometriosis pain by investigating the factors that exacerbate and alleviate pain-related impact and distress, despite similar levels of pain severity.
designA mixed-methods approach was used, comprising quantitative pain data, qualitative interviews, and qualitative analysis of open-ended survey responses.
methodsA total of 873 participants answered an online survey including pain outcomes. Sixteen participants were then purposively sampled for interview, in an iterative manner, in line with grounded theory until theoretical saturation was reached. Analysis of interview data resulted in a novel model of endometriosis pain. The model was cross-validated and refined using content analysis of 841 open-ended online survey responses regarding wider system priorities for endometriosis care.
resultsOur COMPASS model suggested that experiences of endometriosis-related pain and associated distress and impact were shaped by a dynamic interaction between the challenges of the gendered nature of pain, invalidation, distrust in the healthcare system, agency, sense-making, and burden. These experiences were situated within broader systemic factors of difficulty accessing care, the limitations of available treatments, and a lack of financial support.
conclusionsOur findings present a novel model of endometriosis pain. This model provides several psychosocial treatment targets that could inform future psychological and multidisciplinary interventions for endometriosis pain. Empirical validation of the model is an avenue for future research.
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