Evidence map›Paper›PMID 40086200›Full record

ArticleSocial science & medicine (1982)2025

Age-related trajectories of health and cognition in mothers of children with developmental disabilities: Longitudinal findings from two independent studies.

Robert S Dembo, Jinkuk Hong, Leann Smith DaWalt, Marsha R Mailick

Abstract read
In one paragraph

Article in Social science & medicine (1982), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Robert S DemboWaisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI, 53705, USA. Electronic address: rdembo@wisc.edu.
Jinkuk HongWaisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI, 53705, USA. Electronic address: jhong@waisman.wisc.edu.
Leann Smith DaWaltWaisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI, 53705, USA. Electronic address: lesmith2@wisc.edu.
Marsha R MailickWaisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI, 53705, USA. Electronic address: marsha.mailick@wisc.edu.

Funding

U19 MIDlife in the United States-Diversity Supplement-WellsU19AG051426 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI CAROL D. RYFF · 2016 to 2026
$74.8M
STATISTICS COREP01AG020166 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI RYFF, CAROL D. · 2002 to 2015
$50.6M
Integrative Pathways to Cognitive, Affective, and Brain HealthU01AG077928 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI Sterling C Johnson, MARGIE E LACHMAN · 2022 to 2026
$17.7M
Waisman Center Intellectual and Developmental Disabilities Research CenterP50HD105353 · NICHD · UNIVERSITY OF WISCONSIN-MADISON · PI Brittany Gail Travers · 2021 to 2026
$8.5M
Waisman Intellectual and Developmental Disabilities Research Center Down Syndrome RegistryU54HD090256 · NICHD · UNIVERSITY OF WISCONSIN-MADISON · PI CHANG, QIANG · 2016 to 2020
$6.0M
IMPACTS OF PARENTING ADOLESCENTS &ADULTS WITH AUTISMR01AG008768 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI MAILICK, MARSHA RUTH · 1990 to 2011
$4.3M
A Longitudinal Study of Employment and Educational Instability for Young Adults with Autism Spectrum DisorderR01MH121438 · NIMH · VANDERBILT UNIVERSITY MEDICAL CENTER · PI DAWALT, LEANN SMITH, TAYLOR, JULIE LOUNDS · 2020 to 2024
$3.7M
NIA NIH HHS P01 AG020166NIA NIH HHS R01 AG008768NIA NIH HHS U01 AG077928NIA NIH HHS U19 AG051426NICHD NIH HHS P50 HD105353NICHD NIH HHS U54 HD090256NIMH NIH HHS R01 MH121438
6 · The paper itself

Abstract

Developmental disabilities are a heterogenous group of disorders characterized by impairments in physical functioning, learning, language, behavior, and self-care (Zablotsky et al., 2019). Parenting a child with a developmental disability can be a profound source of stress, particularly for mothers. This atypical parenting experience can begin with the birth of the child, or soon thereafter, and continues over the life course, often extending six decades or more. However, there is limited research on the impact of this parenting role across the full adult life course - from mothers' early years of parenting through older age. Here we draw on data from two separate studies, one a national study of mothers of children with a range of developmental conditions (n = 96) and the other a community study of mothers of children with autism (n = 391). We used an accelerated longitudinal design to estimate mothers' trajectories of health, mental health, and cognitive functioning beginning in their 20s and extending until their 80s or beyond, and conducted a series of cohort and sensitivity analyses. Together, the results of analyses of these two studies revealed very similar patterns across a number of important outcomes. The inclusion in one of the studies of a nationally representative comparison group of mothers whose children did not have disabilities (n = 1,181) indicated that after around age 65, aging in mothers of children with developmental disabilities differed from the norm, suggesting the 'wear-and-tear' effects of this common form of stressful parenting.

Indexed as

CognitionDevelopmental DisabilitiesHealth StatusMothersAdolescentAdultAgedAge FactorsChildChild, PreschoolFemaleHumansLongitudinal StudiesMaleMiddle AgedParentingAccelerated longitudinal designAgingAutismCaregiving mothersDevelopmental disabilities

Identifiers

PMID40086200
PMCPMC12086967

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.