Evidence map›Paper›PMID 40085378›Full record

ArticleEuropean geriatric medicine2025

The perspectives on advance care planning of older people with psychotic illnesses and their carers.

Anne Wand, Aspasia Karageorge, Yucheng Zeng, Roisin Browne, Meg Sands, Daniella Kanareck, Vasi Naganathan, Anne Meller, Carolyn Smith, Carmelle Peisah

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in European geriatric medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Anne WandSpecialty of Psychiatry, Faculty of Medicine and Health, University of Sydney, Sydney, Australia. a.wand@unsw.edu.au.ORCID http://orcid.org/0000-0002-7811-5225
Aspasia KarageorgeBrain and Mind Centre, University of Sydney, Sydney, Australia.ORCID http://orcid.org/0000-0002-7898-042X
Yucheng ZengFaculty of Medicine and Health, University of Sydney, Sydney, Australia.ORCID http://orcid.org/0009-0009-2114-5157
Roisin BrowneCapacity Australia, Sydney, Australia.ORCID http://orcid.org/0009-0008-4617-9524
Meg SandsFaculty of Medicine and Health, Prince of Wales Clinical School, University of New South Wales, Sydney, Australia.ORCID http://orcid.org/0000-0002-1154-9037
Daniella KanareckOlder Peoples Mental Health Service, Prince of Wales Hospital, Randwick, NSW, Australia.
Vasi NaganathanFaculty of Medicine and Health, University of Sydney, Sydney, Australia.ORCID http://orcid.org/0000-0001-7243-0796
Anne MellerClinical Nurse Consultant, Advance Care Planning (retired), Prince of Wales Hospital and Community Health Service, Sydney, Australia.
Carolyn SmithCarer Advocate for Advance Care Planning, Sydney, Australia.
Carmelle PeisahSpecialty of Psychiatry, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.ORCID http://orcid.org/0000-0002-7934-7001

Funding

Moyira Elizabeth Vine Fund for Research into Schizophrenia Program 2023 no number assigned
6 · The paper itself

Abstract

purposeTo examine the attitudes, experiences, and perceived facilitators and barriers to Advance Care Planning (ACP), of older people with schizophrenia and other psychotic illness and their carers.

methodsOlder people with a psychotic illness and carers were recruited from public mental health services in Sydney, Australia. Semi-structured interviews to explore attitudes, experiences, and perceived barriers and facilitators to ACP were conducted by an external clinician. Consumers' medical, psychiatric and drug health diagnoses were recorded and they completed cognitive and symptom rating scales. Reflexive thematic analysis was used to analyse the transcripts of interviews, within an interpretive description framework.

resultsThematic saturation was achieved with 12 consumers and 5 carers. Emergent themes from consumer interviews were (i) 'What is ACP?'; (ii) 'I have not done ACP because…..'; (iii) 'I want to do ACP'; (iv) 'If I was to do ACP I would need..'; and (v) 'Mental health clinicians have the skills to help me with ACP'. Carer themes included (i) 'We do not participate in ACP', (ii) 'I want to participate in ACP', and (iii) 'Key clinician skills are needed'. There was convergence of themes from both groups.

conclusionThis study demonstrates that older people with a psychotic illness can express views regarding ACP, despite ongoing symptoms of psychosis, cognitive impairment and mild-moderate severity of illness. The emergent themes highlight opportunities to intervene to overcome barriers to ACP, including education for both participant groups and clinicians, practical considerations and the need for all to collaborate, including with primary care.

Indexed as

Advance Care PlanningCaregiversPsychotic DisordersAgedAged, 80 and overAustraliaFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchSchizophreniaDeath and dyingHealthcare systemsPalliative carePsychosisQualitative

Identifiers

PMID40085378
PMCPMC12174174

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.