Evidence map›Paper›PMID 40084610›Full record

ArticleScandinavian journal of caring sciences2025

Prevalence and Predictors of Caregiver Distress in Six European Communities: Data From the IBenC Study, Using interRAI-Home Care Assessments.

Inga Valgerdur Kristinsdottir, Palmi V Jonsson, Ingibjorg Hjaltadottir, Kristin Bjornsdottir

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Article in Scandinavian journal of caring sciences, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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2citing papers in PubMed
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3 · Its place in the literature

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2 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

4 authors.

Inga Valgerdur KristinsdottirFaculty of Nursing and Midwifery, University of Iceland, Reykjavik, Iceland.ORCID 0000-0002-7086-0757
Palmi V JonssonThe Primary Health Care of the Capital Area, Reykjavik, Iceland.ORCID 0009-0002-7174-2274
Ingibjorg HjaltadottirFaculty of Nursing and Midwifery, University of Iceland, Reykjavik, Iceland.ORCID 0000-0003-1193-1380
Kristin BjornsdottirFaculty of Nursing and Midwifery, University of Iceland, Reykjavik, Iceland.ORCID 0000-0001-7388-3244

Funding

The Fundation of St. Josefs Hospital in Cooperation with The Icelandic Gerontological Research Center, National University Hospital of IcelandThe University of Iceland Research fund
6 · The paper itself

Abstract

backgroundIn a changing world where populations are ageing and older people need assistance to live at home, caring for an older relative can be challenging and have various consequences for caregivers.

methodsIn this cross-sectional study, caregiver distress in six European countries-Iceland, Belgium, Finland, Germany, Italy and the Netherlands-was examined and compared. The study aimed to determine the prevalence of distress among caregivers of older people receiving home care in these six countries and identify if factors related to the older person's condition, such as health or function, predict it. The analysis drew on data collected from 2014 to 2016 for the IBenC study (Identifying Best Practices for care-dependent elderly by Benchmarking Costs and Outcomes of Community Care), using the interRAI-Home Care (HC) instrument. A total of 2884 home care clients > 65 years from the six countries participated in the study. Descriptive statistics indicated the characteristics of the sample, and bivariate and multivariate logistic regression models established predictive independent variables for caregiver distress.

resultsThe percentage of caregiver distress was highest among Icelandic caregivers (34%). In the other countries, it varied from 9% to 22% and was lowest in Finland. Caregivers of clients with signs of depression, clients who have bladder incontinence or who had stayed in hospital in the last 90 days were more likely to experience caregiver distress. Caregiver distress was more prevalent if a client was at risk of severe health decline and had increased care needs.

conclusionUsing data from interRAI-HC assessments makes it possible to relate indications of caregiver distress to the characteristics of the older person cared for. Hence, improving their condition might have favourable effects on caregivers. Alertness to caregiver distress is crucial.

Indexed as

CaregiversHome Care ServicesStress, PsychologicalAdultAgedAged, 80 and overCross-Sectional StudiesEuropeFemaleHumansMaleMiddle AgedPrevalenceageingcaregiver distressfamily caregiverhome careinformal caregiverinterRAI‐home careolder people

Identifiers

PMID40084610
PMCPMC11907683

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