Evidence map›Paper›PMID 40083310›Full record

ArticlePalliative & supportive care2025

Development and validation of the Terminal Delirium-Related Distress Scale - Shortform.

Megumi Uchida, Tatsuo Akechi, Tatsuya Morita, Kento Masukawa, Yoshiyuki Kizawa, Satoru Tsuneto, Mitsunori Miyashita

Abstract read
In one paragraph

Article in Palliative & supportive care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Terminal delirium: Is this a diagnosis?Palliative & supportive care · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Megumi UchidaDivision of Palliative Care and Psycho-Oncology, Nagoya City University Hospital, Nagoya, Japan.ORCID https://orcid.org/0000-0003-2815-8400
Tatsuo AkechiDivision of Palliative Care and Psycho-Oncology, Nagoya City University Hospital, Nagoya, Japan.
Tatsuya MoritaDepartment of Palliative and Supportive Care, Palliative Care Team, and Seirei Hospice, Seirei Mikatahara General Hospital, Hamamatsu, Japan.
Kento MasukawaDepartment of Palliative Nursing, Health Sciences, Graduate School of Medicine, Tohoku University, Sendai, Japan.
Yoshiyuki KizawaDepartment of Palliative Medicine, Faculty of Medicine, University of Tsukuba, Tsukuba, Japan.ORCID https://orcid.org/0000-0003-2456-5092
Satoru TsunetoDepartment of Human Health Sciences, Graduate School of Medicine, Kyoto University, Kyoto, Japan.
Mitsunori MiyashitaDepartment of Palliative Nursing, Health Sciences, Graduate School of Medicine, Tohoku University, Sendai, Japan.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWe previously developed a 24-item Terminal Delirium-Related Distress Scale (TDDS) to evaluate patient and family distress due to terminal delirium. However, a scale with fewer evaluation items was needed to reduce the burden on terminally ill patients and their families. Thus, the TDDS Shortform (TDDS-SF) was developed, and the validity and reliability of the scale were evaluated.

objectivesThe aim of this study is to evaluate the validity and reliability of TDDS-SF.

methodsItems with insufficient loading (<0.6) based on factor analysis were removed from the TDDS. Palliative care experts reviewed each item and checked the structure of the scale. Based on their feedback, we developed the TDDS-SF, a 15-item questionnaire consisting of 4 subscales, including "Care for the family," "Ability to communicate," "Psychiatric symptoms," and "Adequate information and discussion about treatment for delirium." A cross-sectional, self-completed questionnaire survey of bereaved families of cancer patients who were admitted to a hospice/palliative care unit was conducted in August 2018. The survey included the TDDS-SF, Good Death Inventory (GDI), Care Evaluation Scale (CES), and distress score in the Delirium Experience Questionnaire. The validity, including construct validity, convergent validity, discriminant validity, and internal consistency, and reliability, including the Cronbach's alpha coefficient for internal consistency, of the TDDS-SF were evaluated.

resultsThe study included 366 bereaved family members. Factor analysis revealed good construct validity. Convergent validity was demonstrated based on good correlations with the CES ( SIGNIFICANCE OF

resultsThe TDDS-SF is a valid and feasible tool for assessing irreversible terminal delirium-related distress. A study targeting patients and their families with end-of-life delirium is planned for the near future.

Indexed as

DeliriumPsychometricsStress, PsychologicalAdultAgedAged, 80 and overCross-Sectional StudiesFactor Analysis, StatisticalFemaleHumansMaleMiddle AgedReproducibility of ResultsSurveys and QuestionnairesTerminal CareCancerDeliriumEnd-of-lifePalliative careTerminal delirium

Identifiers

PMID40083310
PMCPMC13166458

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.