ArticleJournal of pain and symptom management2025
Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care.
Article in Journal of pain and symptom management, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- A dyadic approach to understanding anxiety and child overall health in pediatric oncology: insights from an actor-partner interdependence model.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Parental Health Literacy as a Contextual Factor in Proxy-Reported Child Mental Health: A Population-Based Study of Children Aged 6-10 Years.Children (Basel, Switzerland) · 2026Article
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12 authors.
Funding
Abstract
contextIn pediatric palliative care (PPC), patients often are not able to report symptoms so proxy reports from parents are used. Whether psychological distress in the proxies affects reports of patients' symptoms is unknown.
objectiveTo measure the influence of parents' distress on proxy-reported scores regarding symptoms by analyzing pairs of parents reporting on the same child.
methodsIn a large prospective cohort study of PPC patients, we collected parents' reports of child symptoms (Memorial Symptom Assessment Scale) and their own psychological distress (Kessler-6). In this quasi-experimental design study, we examined data from pairs of parents reporting symptoms for the same child. Using regression modelling, we estimated the association between parental distress scores and patient total symptom scores across the entire sample accounting for clustering within families, and then measured the association within-families of the absolute differences of the two parents' distress and the difference in their symptom scores.
resultsAmong 152 parents in 76 families, 50.0% were female, 80.9% were White, and the mean age was 36.4 (SD 9.0) years. Across the sample, each 1-point increase in reported parental distress was associated with a 1.07 (95% CI, 0.87-1.28; P < 0.001) increase in proxy-reported patient symptom score. Within families, relative to the other parent, each 1-point increase in the difference of the distress scores was associated with a 0.33-point (95% CI, 0.32-0.35; P = 0.006) increase in the difference in symptom scores.
conclusionPsychological distress appears to influence proxy reports of symptoms which has implications for future research and clinical practice.
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