ArticleJournal of cancer survivorship : research and practice2026
"Do I buy my children shoes, or do I get a compression garment for my lymphoedema?" Australian stakeholder perspectives on cancer-related lymphoedema care.
Article in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeTo identify the experiences and challenges some cancer survivors face in managing lymphoedema and to explore how they and healthcare professionals can best address them.
methodsA qualitative participatory methodology was employed, involving two stakeholder consultation workshops (one face-to-face and one online). Sessions were audio-recorded, and thematically analysed. Workshops involved 55 participants, comprising people with lived experience of diverse cancers (n = 19) and multidisciplinary healthcare professionals (n = 36) in Australia.
resultsParticipants identified three key challenges: awareness, access, and financial burden. These informed the identification of three key enablers for better consumer-centred care: patient and provider education/training, care pathway, and recognition of lymphoedema as a chronic disease. The need for a national registry system was identified as a key enabler to quantify the burden of disease to support equitable access to resources and treatment.
conclusionCancer survivors at risk of, or experiencing lymphoedema, face significant challenges that could be overcome through initiatives prioritising self-management education and clinician training, navigation, and reimbursement for care. IMPLICATIONS FOR CANCER SURVIVORS: Lymphoedema risk reduction and management remains a neglected aspect of survivorship care but survivors and healthcare providers identify a number of strategies to improve lymphoedema care that warrant examination.
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