SynthesisInternational journal for equity in health2025
Barriers and facilitators for engaging underrepresented ethnic minority populations in healthcare research: an umbrella review.
Synthesis in International journal for equity in health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 53 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
53 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and Facilitators to Participation in Psychosocial Research for Adults With Intellectual Disabilities: A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Improving diversity in research: Successes and limitations of research team education in fostering inclusive recruitment practices and community voice.Accountability in research · 2026Trial
- Completion and Compliance Rates for an Intensive mHealth Study Design to Promote Self-Awareness and Self-Care Among Care Partners of Individuals With Traumatic Brain Injury: Secondary Analysis of a Randomized Controlled Trial.JMIR mHealth and uHealth · 2025Trial
- Clinical, Patient Experience and Service Outcomes of a Leisure Centre-Based NHS Musculoskeletal Physiotherapy Service: A Service Evaluation.Musculoskeletal care · 2026Article
- Does Waiver of Informed Consent in Low-Risk Randomised Controlled Trials Improve Research Inclusion? Insights from a Review of the UK Health Research Authority Confidentiality Advisory Group Register.Journal of empirical research on human research ethics : JERHRE · 2026Review
- Involving a black woman patient and public involvement group in maternal health methodology research: learning from the PROMISE Study.Research involvement and engagement · 2026Article
- Considerations for the design of impactful citizen-science projects in microbiome research.Nature protocols · 2026Review
- The Role of Acculturative Stress, Emotion Dysregulation, and Escape Motivation in Problem Gambling Among Immigrants in Australia.Journal of gambling studies · 2026Article
- Recruitment and Retention of Racially Minoritized Families in a Pediatric Behavioral Diabetes Research Study.Journal of clinical psychology in medical settings · 2026Article
- "It's Like Disrupting Internally:" a Qualitative Study of Opportunities and Limitations to Promote Diversity in Participant Recruitment in Health Research.Journal of racial and ethnic health disparities · 2026Article
- Faith, Culture, and Cancer: A Qualitative Study Exploring Muslim Women's Perspectives on Clinical Trials in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Using intersectionality to inform fit-for-purpose patient-reported outcome measure development: a qualitative interview study.Journal of patient-reported outcomes · 2026Article
- Article
- Translation and interpreting services must be considered across the lifecycle of clinical trials.Trials · 2026Article
- Building the Oncology Workforce: A Qualitative Evaluation of an Inter-Institutional Cancer Research Internship for Underrepresented Undergraduate Students.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Multistakeholder perspectives on geographical accessibility to emergency obstetric care in Benin City, Nigeria.African journal of emergency medicine : Revue africaine de la medecine d'urgence · 2026Article
- Pozole, Patasca, and More: Lessons in Representation, Trust and Diversity from Hispanic Research Recruitment.Journal of immigrant and minority health · 2026Article
- Navigating Long-Term Co-Creative Research With Young Adults Diagnosed With Cancer: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Article
- Bridging the Practice Gap: Polycystic Ovary Syndrome as an Under-Recognised Risk State for Ischaemic Stroke and Cardiovascular Disease.Journal of clinical medicine · 2026Review
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundResearch highlights that participation of ethnic minority individuals in research is low when compared to white counterparts. This poses challenges for healthcare planning and delivery, as lack of representativeness in research means that findings are generalised across all ethnic groups, and do not provide stakeholders with a full picture of how minority populations are affected. This contributes to health inequalities as these populations may then be underserved and not get the best possible management if differences due to ethnicity were to exist. This study synthesises the barriers to engaging minority individuals in research to understand, and enablers to better engagement of different minority communities in healthcare research.
methodsFive databases were searched (MEDLINE, CINAHL, PsycINFO and Web of Science and EMBASE) up to 29th April 2024, resulting in 897 articles, of which 11 met the inclusion criteria. Data were extracted from reviews and synthesised using qualitative meta-aggregation techniques. The socio-ecological framework was applied to synthesise the main outcomes. A protocol for this review was registered on PROSPERO (CRD42024532686).
resultsThe main barriers for research participation included: mistrust of healthcare professionals, research and researchers; socioeconomic and logistical challenges; language and cultural barriers; lack of awareness; external influences and perceived bias. Facilitators to support better research participation included: Community engagement and personalised approaches; culturally sensitive research strategies; linguistically appropriate study materials and study advertising; education workshops.
conclusionsTo enable wider participation, it is important to understand not only the barriers but also to employ culturally appropriate facilitators, engaging with patient and public involvement (PPI) groups that communities trust, offer cultural training for researchers, and adopt a more collaborative and transparent way of working. This overview highlights the work that needs to be done on an intrapersonal, interpersonal, community and policy level to make research accessible and inclusive for ethnic minority groups.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.