Evidence map›Paper›PMID 40053792›Full record

ArticleJMIR research protocols2025

Using the Community Resilience Model and Project ECHO to Build Resiliency in Direct Support Professionals: Protocol for a Longitudinal Survey.

Kristina Puzino Lenker, Laura L Felix, Sarah Cichy, Erik Lehman, Jeanne M Logan, Michael Murray, Jennifer L Kraschnewski

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Article in JMIR research protocols, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Kristina Puzino Lenker *Department of Psychiatry and Behavioral Health, Penn State College of Medicine, Hershey, PA, United States.ORCID 0000-0002-2607-1224
Laura L Felix *Department of Internal Medicine, Penn State College of Medicine, Hershey, PA, United States.ORCID 0000-0002-2335-0228
Sarah CichyDepartment of Internal Medicine, Penn State College of Medicine, Hershey, PA, United States.ORCID 0000-0002-7480-9502
Erik LehmanDepartment of Public Health Sciences, Penn State College of Medicine, Hershey, PA, United States.ORCID 0000-0003-3642-0632
Jeanne M LoganDepartment of Psychiatry and Behavioral Health, Penn State College of Medicine, Hershey, PA, United States.ORCID 0009-0005-3579-225X
Michael MurraySheppard Pratt, Towson, MD, United States.ORCID 0009-0006-6152-0634
Jennifer L KraschnewskiDepartment of Internal Medicine, Penn State College of Medicine, Hershey, PA, United States.ORCID 0000-0003-0998-1346

Funding

Penn State Clinical and Translational Science InstituteUL1TR002014 · NCATS · PENNSYLVANIA STATE UNIV HERSHEY MED CTR · PI KRASCHNEWSKI, JENNIFER L. · 2016 to 2025
$33.7M
NCATS NIH HHS UL1 TR002014
6 · The paper itself

Abstract

backgroundIndividuals with intellectual disabilities or autism spectrum disorder (ID/A) sometimes require supportive services from direct support professionals (DSPs). The supportive care provided to individuals with ID/A by DSPs can vary from assistance with daily living activities to navigating society. The COVID-19 pandemic not only exacerbated poor outcomes for individuals with ID/A but also for DSPs, who report experiencing burnout in the aftermath of the pandemic. DSPs are critical to providing much-needed support to individuals with ID/A.

objectiveThe goal of this study is to evaluate the impact of the community resilience model on DSP burnout and neurodivergent client outcomes using the Project ECHO (Extension for Community Healthcare Outcomes) telementoring platform as a dissemination tool.

methodsThis protocol leverages community resilience theory and telementoring through the Project ECHO model to foster resilience in DSPs and their neurodiverse client population. ECHO participants' resilience behaviors will be evaluated via surveys including the Connor Davison Resilience Scale and the WHO-5 Well-Being Index. These surveys will be administered preprogram, at the end of the 8-week ECHO program, and 90 days after the ECHO program's completion. Pre-post relationships will be assessed using generalized estimating equations. The main outcomes will be self-reported changes in knowledge, self-efficacy, and resilience.

resultsAll ECHO program cohorts and follow-up data collection have concluded, with 131 survey participants. The project team is currently analyzing and interpreting the data. We anticipate having all data analyzed and interpreted by February 2025.

conclusionsDSPs provide critical services to individuals with ID/A. By providing skills in resiliency via the ECHO model, participants will be able to apply resiliency to their own professional lives while fostering resilience within their neurodiverse client base, leading to increased positive outcomes for both groups. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/59913.

Indexed as

Autism Spectrum DisorderCOVID-19Health PersonnelIntellectual DisabilityResilience, PsychologicalBurnout, ProfessionalHumansLongitudinal StudiesSARS-CoV-2Surveys and QuestionnairesTelemedicineASDautismautism spectrum disorderburnoutcommunity resiliencecommunity resilience modeldirect support professionalsDSPevidence-based knowledgeintellectual disabilitiesmethods and feasibilityneurodevelopmental disordersneurodivergent clientneurodiversityProject ECHOresilienceresiliencysupportive caretelementoring

Identifiers

PMID40053792
PMCPMC11926437

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.