ArticleActa paediatrica (Oslo, Norway : 1992)2025
Higher Self-Than Parent-Reported Health-Related Quality of Life in Adolescents With Cerebral Palsy; a Register Study.
Article in Acta paediatrica (Oslo, Norway : 1992), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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The trial behind it
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Who cites it
2 citing papers in PubMed.
- Parent-child agreement in reporting somatic distress, gastrointestinal symptoms, mental health, and general health in girls with functional abdominal pain.European journal of pediatrics · 2025Trial
- Examining the face validity of the EQ-HWB-9 in dementia: caregiver interpretation across "Today" and "7-Day" recall periods.Health and quality of life outcomes · 2026Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
aimTo investigate health-related quality of life (HRQoL) in adolescents with cerebral palsy (CP), compare self-reporting with parental proxy-reporting and identify factors associated with low HRQoL.
methodsAdolescents aged 15-17 years with normal to mildly impaired cognitive function enrolled in the Norwegian Quality and Surveillance Registry for CP were eligible. Adolescents with both self- and parental proxy-report on HRQoL (Paediatric Quality of Life; PedsQL) were included. Self- and proxy-reported physical and psychosocial domain HRQoL scores were analysed for associations by sex, mobility, pain and mental health (Strengths and Difficulties Questionnaire; SDQ).
resultsSeventy-two adolescent-parent HRQoL dyads were retrieved. Self-reported HRQoL was higher than parental proxy-reported HRQoL in all domains. Females reported lower HRQoL. A higher level of mobility was associated with higher physical, but not with higher psychosocial functioning in both self- and proxy-reports. Pain was associated with decreased proxy-reported psychosocial functioning. Increased SDQ total difficulties scores were associated with decreased self- and proxy-reported psychosocial functioning and proxy-reported physical functioning.
conclusionAdolescents with CP reported a higher HRQoL than their parents proxy-reported. The severity of motor impairment was not associated with psychosocial well-being. Mental health issues decreased both self- and parental proxy-reported HRQoL. Pain decreased parental proxy-reported HRQoL.
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