Evidence map›Paper›PMID 40050522›Full record

ArticlePediatric surgery international2025

Enrollment disparities in the PCPLC's patient-reported outcome measures (PROMs) study.

Kate E McNevin, Lauren N Nicassio, Samuel E Rice-Townsend, Jeffrey R Avansino, Andrea Badillo, Casey M Calkins, Megan M Durham, Rachel Crady, Ron W Reeder, Rebecca M Rentea and 3 more

Abstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Pediatric surgery international, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Kate E McNevinDepartment of Surgery, Seattle Children's Hospital, University of Washington, 4800 Sand Point Way NE, Seattle, WA, 98105, USA. kate.mcnevin@seattlechildrens.org.
Lauren N NicassioDepartment of Surgery, Seattle Children's Hospital, University of Washington, 4800 Sand Point Way NE, Seattle, WA, 98105, USA.
Samuel E Rice-TownsendDepartment of Surgery, Seattle Children's Hospital, University of Washington, 4800 Sand Point Way NE, Seattle, WA, 98105, USA.
Jeffrey R AvansinoDepartment of Surgery, Seattle Children's Hospital, University of Washington, 4800 Sand Point Way NE, Seattle, WA, 98105, USA.
Andrea BadilloDepartment of Surgery, Children's National Hospital, George Washington University, Washington, DC, USA.
Casey M CalkinsDepartment of Surgery, Children's Wisconsin, Medical College of Wisconsin, Milwaukee, WI, USA.
Megan M DurhamDepartment of Surgery, Children's + Emory Pediatric Institute, Atlanta, GA, USA.
Rachel CradyDepartment of Pediatrics, University of Utah, Salt Lake City, UT, USA.
Ron W ReederDepartment of Pediatrics, University of Utah, Salt Lake City, UT, USA.
Rebecca M RenteaDepartment of Surgery, Children's Mercy Hospital, University of Missouri-Kansas City, Kansas City, MO, USA.
Michael D RollinsDepartment of Surgery, Primary Children's Hospital, University of Utah, Salt Lake City, UT, USA.
Caitlin A SmithDepartment of Surgery, Seattle Children's Hospital, University of Washington, 4800 Sand Point Way NE, Seattle, WA, 98105, USA.
Pediatric Colorectal and Pelvic Learning Consortium

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient-reported outcomes have become an important metric for assessing quality of life and long-term clinical status. The Pediatric Colorectal and Pelvic Learning Consortium (PCPLC) evaluates the quality of life of patients with congenital colorectal diagnoses through the PCPLC Patient (and Parent) Reported Outcome Measures (PROMs) study. We sought to identify how socioeconomic disparities affect the enrollment rates of our patient population in the PROMs study.

methodsA multicenter, retrospective study of children evaluated at sites participating in the PCPLC PROMs study was performed. We evaluated associations of the participants' demographic information with screening, enrollment, and consent for the PROMs study.

resultsOf the 3505 participants enrolled in the PCPLC, 724 patients were eligible for the study. Demographics and enrollment practices varied by site. Hispanic ethnicity (p = 0.015) and public insurance (p = 0.013) were independently associated with lower enrollment, stratifying by site. Race was not independently associated with enrollment.

conclusionsThese results suggest that enrollment of participants into the PROMs study may be preferential for certain demographic groups, regardless of PCPLC site location and independent of demographic composition at each site. Further investigation is needed to develop strategies to ensure equitable screening and enrollment.

Indexed as

Patient Reported Outcome MeasuresPatient SelectionQuality of LifeAdolescentChildChild, PreschoolFemaleHumansInfantMaleRetrospective StudiesSocioeconomic FactorsUnited StatesPatient reported outcomesRacial disparitiesSocioeconomic disparitiesSurveys

Identifiers

PMID40050522

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.