Evidence map›Paper›PMID 40050513›Full record

ArticleEarly intervention in psychiatry2025

Navigating the Maze: Caregiver Perspectives on Pathways to Mental Health Care for U.S. Youth at Clinical High Risk for Psychosis.

Vanessa Calderon, Jennifer M Gamarra, Bernalyn Ruiz-Yu, Danielle M Denenny, Jamie L Zinberg, Carrie E Bearden, David J Miklowitz

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Early intervention in psychiatry, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Vanessa CalderonDepartment of Psychiatry and Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, University of California Los Angeles, Los Angeles, California, USA.
Jennifer M GamarraDepartment of Psychology, California Lutheran University, Thousand Oaks, California, USA.
Bernalyn Ruiz-YuDepartment of Psychiatry and Behavioral Sciences, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts, USA.
Danielle M DenennyDepartment of Psychiatry and Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, University of California Los Angeles, Los Angeles, California, USA.
Jamie L ZinbergDepartment of Psychiatry and Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, University of California Los Angeles, Los Angeles, California, USA.
Carrie E BeardenDepartment of Psychiatry and Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, University of California Los Angeles, Los Angeles, California, USA.
David J MiklowitzDepartment of Psychiatry and Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, University of California Los Angeles, Los Angeles, California, USA.ORCID 0000-0002-9647-6147

Funding

Family-Focused Therapy for Individuals at High Clinical Risk for Psychosis: A Confirmatory Efficacy TrialR01MH123575 · NIMH · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI BEARDEN, CARRIE E, MIKLOWITZ, DAVID JAY · 2020 to 2023
$5.4M
Clinical Research Training in Schizophrenia and Other PsychosesT32MH122395 · NIMH · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI KEITH H NUECHTERLEIN · 2021 to 2026
$1.8M
NIMH NIH HHS 5R01MH123575-04NIMH NIH HHS 5T32MH122395-02NIMH NIH HHS R01 MH123575NIMH NIH HHS T32 MH122395
6 · The paper itself

Abstract

aimTreatment for youth who are at clinical high risk for psychosis (CHR-P) presents an opportunity for early intervention with the capacity to decrease the burden associated with a potential psychotic disorder later in life. However, significant barriers prevent youth at CHR-P from accessing speciality mental health services. Few studies have examined the pathways to care for youth at CHR-P within the U.S. health system.

methodsThe present study reports the results of a codebook thematic analysis of qualitative interviews conducted with caregivers (primarily parents) of 15 youth (ages 12-25 years) who entered a CHR-P speciality program. Using a semi-structured interview, we inquired about their experiences navigating the health system to eventually arrive at the speciality program, including help-seeking events and referrals, caregivers' attributions for youths' CHR-P symptoms, and barriers and facilitators to care.

resultsCaregivers reported confusion and uncertainty regarding the causes of symptoms. They also disclosed the significant challenges to obtaining mental health care, including low mental health literacy, illness stigma, provider unavailability or appropriateness and adequacy of referrals. Most of the youth had encounters with emergency services during their help-seeking journey.

conclusionOur results help define targets for future policy, research and clinical efforts to improve access to speciality care for youth at CHR-P in the U.S.

Indexed as

CaregiversHealth Services AccessibilityMental Health ServicesPatient Acceptance of Health CarePsychotic DisordersAdolescentAdultChildFemaleHumansMaleQualitative ResearchUnited StatesYoung Adultcaregiversclinical high riskhelp‐seekingpathways to carepsychosis

Identifiers

PMID40050513
PMCPMC12124215

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.