Evidence map›Paper›PMID 40050404›Full record

ArticleJournal of perinatology : official journal of the California Perinatal Association2025

Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports.

Emily Marshall, Colette Gramszlo, Alejandra Perez Ramirez, Anne E Kazak, Amanda J Shillingford, Cynthia M Ortinau, Sarah L Kelly, Nadine Kasparian, Lindsay A Edwards, Allison A Divanovic and 5 more

Abstract read
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In one paragraph

Article in Journal of perinatology : official journal of the California Perinatal Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Emily MarshallNemours Cardiac Center, Nemours Children's Hospital Delaware, Wilmington, DE, USA.
Colette GramszloNemours Cardiac Center, Nemours Children's Hospital Delaware, Wilmington, DE, USA.
Alejandra Perez RamirezNemours Center for Healthcare Delivery Science, Nemours Children's Hospital Delaware, Wilmington, DE, USA.
Anne E KazakSidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, PA, USA.
Amanda J ShillingfordCardiac Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Cynthia M OrtinauDepartment of Pediatrics, Washington University in St. Louis, St. Louis, MO, USA.ORCID http://orcid.org/0000-0003-0851-0796
Sarah L KellyDepartments of Pediatrics and Psychiatry, University of Colorado School of Medicine, Aurora, CO, USA.ORCID http://orcid.org/0000-0002-6137-6824
Nadine KasparianHeart and Mind Wellbeing Center, Heart Institute and Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.ORCID http://orcid.org/0000-0001-8075-6817
Lindsay A EdwardsSeattle Children's Hospital, Seattle, WA, USA.
Allison A DivanovicDepartment of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
Jo Ann DavisDepartment of Pediatrics, Nationwide Children's Hospital, Columbus, OH, USA.
Samantha C ButlerDepartment of Psychiatry and Behavioral Sciences, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.
Katherine BraleyNemours Cardiac Center, Nemours Children's Hospital Florida, Orlando, FL, USA.
Erin RiegelParent Research Partner, Wilmington, DE, USA.
Erica SoodNemours Cardiac Center, Nemours Children's Hospital Delaware, Wilmington, DE, USA. erica.sood@nemours.org.ORCID http://orcid.org/0000-0001-8817-4213

Funding

AHRQ HHS K12 HS026393U.S. Department of Health & Human Services | Agency for Healthcare Research and Quality (AHRQ) 5K12HS026393
6 · The paper itself

Abstract

objectiveTo identify social stressors and supports for expectant parents after prenatal diagnosis of congenital heart disease (CHD) and inform interventions to reduce distress.

methodParents of children diagnosed prenatally with CHD (N = 37) were purposively sampled across eight health systems. Qualitative data were collected using crowdsourcing methods and coded/analyzed using thematic analysis.

resultsSocial stressors increasing distress after prenatal diagnosis were widely endorsed: (1) feelings of loneliness (most common: 68%), (2) well-meaning yet unhelpful comments, (3) loss of celebration of pregnancy, (4) information overload, and (5) untimely/insensitive discussions surrounding pregnancy termination. Social supports included: (1) emotional support and small acts of kindness, (2) hope/connection through the experiences of others, (3) informational support, (4) nurturing normalcy and the joy of pregnancy, and (5) connection through religion/spirituality.

conclusionInterpersonal relationships are vital for coping with prenatal diagnosis. Interventions to reduce distress after prenatal diagnosis should attend to common social stressors.

Indexed as

Heart Defects, CongenitalInterpersonal RelationsParentsPrenatal DiagnosisSocial SupportStress, PsychologicalAdaptation, PsychologicalAdultFemaleHumansLonelinessMalePregnancyQualitative Research

Identifiers

PMID40050404
PMCPMC12317836

What OpenQuestion holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.