Evidence map›Paper›PMID 40042436›Full record

SynthesisEuropean eating disorders review : the journal of the Eating Disorders Association2025

Understanding the Autistic Experience of Restrictive Eating Disorders-A Systematic Review and Qualitative-Synthesis.

Rachel Loomes, Katy Chivers, Chloé Georgeaux-Healy, Will Mandy, Tom Jewell

Abstract readSystematic Review
In one paragraph

Synthesis in European eating disorders review : the journal of the Eating Disorders Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Article
  2. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Rachel LoomesDepartment of Clinical, Educational & Health Psychology, University College London, London, UK.ORCID https://orcid.org/0000-0002-4646-6514
Katy ChiversFlorence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London, UK.
Chloé Georgeaux-HealyDepartment of Clinical, Educational & Health Psychology, University College London, London, UK.
Will MandyDepartment of Clinical, Educational & Health Psychology, University College London, London, UK.ORCID https://orcid.org/0000-0002-3564-5808
Tom JewellFlorence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London, UK.ORCID https://orcid.org/0000-0003-4084-7786

Funding

National Institute for Health and Care Research
6 · The paper itself

Abstract

objectiveTo synthesise qualitative findings on the autistic experience of restrictive eating disorders in order to identify common themes and use this to inform future research on the development of more effective care.

methodThis systematic review was pre-registered on PROSPERO (CRD42023434116) and followed PRISMA guidelines. CINAHL, PsycINFO, Medline, Embase, Web of Science and Global Health databases were searched. Studies were included if they contained qualitative data detailing the autistic experience of restrictive eating disorders from autistic people, carers or healthcare professionals. The Critical Appraisal Skills Programme was used to assess quality of studies. Recurring themes were identified via thematic synthesis.

resultsNine studies met the inclusion criteria, all focused on anorexia nervosa. Four themes arose from the analysis: (1) the relationship between autism and restrictive eating; (2) the journey to self-understanding; (3) experience of eating disorder services; (4) suggested treatment adaptations.

conclusionFindings suggest a broad range of mechanisms underlying the development and perpetuation of anorexia nervosa that are related to autism and are not consistently acknowledged and addressed in current care provision. This emphasises the need for more research into developing adapted or novel interventions for autistic people with eating disorders, as well as training programmes for clinicians.

Indexed as

Anorexia NervosaAutistic DisorderFeeding and Eating DisordersHumansQualitative Researchanorexia nervosaautismqualitativesystematic reviewtreatment

Identifiers

PMID40042436
PMCPMC12171672

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.