Observational studyJournal of palliative medicine2025
Spiritual Well-Being and Phenoconversion in Huntington's Disease: Analysis from the Prospective Huntington at Risk Observational Study.
Leonard L Sokol, Marissa C Ashner, Danny Bega, Benzi M Kluger, Alexander K Smith, Karen S Marder, Tanya P Garcia, PHAROS Investigators of the Huntington Study Group
Abstract readObservational Study
In one paragraphObservational study in Journal of palliative medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
2 · The registryThe trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
3 · Its place in the literatureWho cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
4 · The recordCorrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
5 · Who and what moneyAuthors and funding
8 authors.
Leonard L SokolThe Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Marissa C AshnerDepartment of Biostatistics, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Danny BegaThe Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Benzi M KlugerDepartments of Neurology and Medicine, University of Rochester Medical Center, Rochester, New York, USA.
Alexander K SmithDivision of Geriatrics, Department of Medicine, University of California, San Francisco, San Francisco, California, USA.
Karen S MarderDepartment of Neurology, Columbia University Medical Center, New York, New York, USA.
Tanya P GarciaDepartment of Biostatistics, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Funding
Prospective Huntington At Risk Observational Study (PHAROS)R01HG002449 · NHGRI · UNIVERSITY OF ROCHESTER · PI SHOULSON, IRA · 2002 to 2009
$7.6MLandis Award for Outstanding Mentorship: Administrative Supplement to NS131225R01NS131225 · NINDS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI Tanya Pamela Garcia · 2023 to 2026
$2.2MMentoring Researchers in Prognosis Research in Alzheimer’s Disease and Related DementiasK24AG068312 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Alexander Keliimoeanu Smith · 2020 to 2026
$1.2MAdvancing Palliative Care for Older Adults Affected by Neurodegenerative Disease: Parkinsons disease, Alzheimers disease and Related DementiasK02AG062745 · NIA · UNIVERSITY OF ROCHESTER · PI KLUGER, BENZI M · 2020 to 2024
$711kNHGRI NIH HHS R01 HG002449NIA NIH HHS K02 AG062745NIA NIH HHS K24 AG068312NINDS NIH HHS R01 NS131225
6 · The paper itselfAbstract
PubMed holds no abstract for this paper.
Indexed as
Huntington DiseaseSpiritualityAdultAgedFemaleHumansMaleMiddle AgedProspective StudiesQuality of LifeHuntington’s diseaseneuropalliativephenoconversionpurpose in life
Identifiers
PMID40040448
PMCPMC12229987
What OpenQuestion holds
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