Evidence map›Paper›PMID 40038663›Full record

ArticleBMC public health2025

Caregiver burden, psychological well-being, and support needs among Swedish informal caregivers.

Sonja Togmat Malki, Peter Johansson, Gerhard Andersson, Frida Andréasson, Ghassan Mourad

Abstract read
In one paragraph

Article in BMC public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Observational
  2. Article
  3. Moral dilemma of family caregivers of urostomy patients: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Sonja Togmat MalkiDepartment of Health, Medicine and Caring Sciences, Linköping University, Linköping, 601 74, Sweden. sonja.togmat.malki@liu.se.
Peter JohanssonDepartment of Health, Medicine and Caring Sciences, Linköping University, Linköping, 601 74, Sweden.
Gerhard AnderssonDepartment of Behavioural Sciences and Learning, Linköping University, Linköping, Sweden.
Frida AndréassonDepartment of Social Work, Linnaeus University, Kalmar, Sweden.
Ghassan MouradDepartment of Health, Medicine and Caring Sciences, Linköping University, Linköping, 601 74, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The proportion of elderly people in the world is increasing, which increases the burden on the healthcare system and requires more formal and informal care. In Europe, informal care accounts for approximately 3.5% of GDP, and this is expected to increase. In Sweden, about 1.3 million people are informal caregivers (900,000 of whom are employed). Informal care is most common among people aged 45-65 years. Informal caregivers suffer from mental and physical health problems, such as depression, anxiety, and cardiovascular issues. The aim of this study was to describe informal caregivers in Sweden, their caregiver burden, psychological well-being, and their support needs. A web survey was used to collect data, and 379 informal caregivers responded to the survey. The results of this study showed that the majority of informal caregivers are women with good economic status and university education. Most care for one person, usually a spouse or a child, and balance work with caregiving tasks. Informal caregivers who provided care, help, and support to one person experienced greater burdens and higher levels of stress and depression. The impact on burden and psychological well-being becomes more pronounced when the informal caregiver has a close relationship or lives in the same household as the care recipient. These findings, and the fact that 82% of the participants use digital tools daily and are open to receiving support digitally, underscore the urgent need for digital interventions to reduce the caregiver burden and improve the psychological well-being of informal caregivers.

Indexed as

Caregiver BurdenCaregiversCost of IllnessSocial SupportAdultAgedFemaleHumansMaleMiddle AgedPsychological Well-BeingStress, PsychologicalSurveys and QuestionnairesSwedenCaregiver burdenInformal caregiversNeedsPsychological well-beingSupport

Identifiers

PMID40038663
PMCPMC11881438

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.